Austin Carlile ( @austincarlile ) Instagram Profile

austincarlile

Austin Carlile

www.marfan.org ❀

  • 192 posts
  • 915.9k followers
  • 305 following

Austin Carlile Profile Information

  • SHE SAID YES!!!
  • SHE SAID YES!!!
  •  3,982  281  5 minutes ago
  • There are no words ❀
  • There are no words ❀
  •  46,587  369  20 hours ago
  • The FIRST time I ever played the piano in public was at my friends funeral in Oakland, California... @maudionfire drove me there from San Jose after I was released from the hospital that same morning. ((it was only the 4th day we had ever spent together)) The first 3 days were at Stanford hospital. I was honored to get to play the same song that I wrote for my friend CJ, that last time we ever spoke. He couldn't sleep & was in pain, so I played for him over the phone until he finally dozed off an hour later. At the funeral, his family all thought Maudi was my wife, thoroughly surprised by our reaction of "uhhh this is literally the first time we've ever been together outside of the hospital." ((i knew that week she was the woman I wanted to marry)) The very next day I flew back to Costa Rica for a whole two months to settle things after 2 years of living there because I had JUST accepted a job in Vegas a week before I even knew she existed. While countries apart, we grew closer & closer. Often times I would have to 4WD my jeep to the top of a nearby mountain for service in the middle of the night, or into the nearest town to sit outside the only place that had adequate wifi just so we could speak & learn each others hearts... Fast forward 7 months to the SECOND time ever playing piano in public... last weekend at an event in Vegas. Sharing my testimony & music I have been writing inspired by the woman (( i now KNOW i WILL marry)) while watching her paint live. You see, music is my heart, God has placed it there. But God has placed PAINTING in her heart. When we gave our hearts to HIM individually, He built us both, then placed our hearts into each others, to build together. The paint in her has brought color into my world, almost as if I've lived my entire life in black & white until now... This next chapter of my life is NOT what I expected or imagined. But just like any piece of true art or music, it usually doesn't turn out how we envisioned... it turns out BETTER. And because it's your heart, because you LOVE IT... you KEEP painting, you KEEP writing, you KEEP playing... YOU KEEP GOING... Loving. every. step. of. the. way πŸ•Š
  • The FIRST time I ever played the piano in public was at my friends funeral in Oakland, California... @maudionfire drove me there from San Jose after I was released from the hospital that same morning. ((it was only the 4th day we had ever spent together)) The first 3 days were at Stanford hospital. I was honored to get to play the same song that I wrote for my friend CJ, that last time we ever spoke. He couldn't sleep & was in pain, so I played for him over the phone until he finally dozed off an hour later. At the funeral, his family all thought Maudi was my wife, thoroughly surprised by our reaction of "uhhh this is literally the first time we've ever been together outside of the hospital." ((i knew that week she was the woman I wanted to marry)) The very next day I flew back to Costa Rica for a whole two months to settle things after 2 years of living there because I had JUST accepted a job in Vegas a week before I even knew she existed. While countries apart, we grew closer & closer. Often times I would have to 4WD my jeep to the top of a nearby mountain for service in the middle of the night, or into the nearest town to sit outside the only place that had adequate wifi just so we could speak & learn each others hearts... Fast forward 7 months to the SECOND time ever playing piano in public... last weekend at an event in Vegas. Sharing my testimony & music I have been writing inspired by the woman (( i now KNOW i WILL marry)) while watching her paint live. You see, music is my heart, God has placed it there. But God has placed PAINTING in her heart. When we gave our hearts to HIM individually, He built us both, then placed our hearts into each others, to build together. The paint in her has brought color into my world, almost as if I've lived my entire life in black & white until now... This next chapter of my life is NOT what I expected or imagined. But just like any piece of true art or music, it usually doesn't turn out how we envisioned... it turns out BETTER. And because it's your heart, because you LOVE IT... you KEEP painting, you KEEP writing, you KEEP playing... YOU KEEP GOING... Loving. every. step. of. the. way πŸ•Š
  •  19,349  165  10 June, 2019
  • Some nights I really miss @chesterbe... This was from one of the last shows I ever played in Las Vegas. I have so much gratitude & appreciation for @m_shinoda, not only for helping me write songs for "Restoring Force" but for his guidance, leadership by example, character, & heart. That goes for all of @linkinpark & their crew as well ❀
  • Some nights I really miss @chesterbe... This was from one of the last shows I ever played in Las Vegas. I have so much gratitude & appreciation for @m_shinoda, not only for helping me write songs for "Restoring Force" but for his guidance, leadership by example, character, & heart. That goes for all of @linkinpark & their crew as well ❀
  •  18,445  380  29 May, 2019
  • "...whenever a miracle occurs it makes ripples, waves, people notice, and lives are changed! The miracle of the single mother fueled by a burning desire to seek God’s face even in the midst of all their adversities, is a flame herself. A bright light, taking your future and shining on it so you can finally see. You can place a candle into a dim room, no matter how dark, and it will never fail to shine. Just as you can place this walking miracle of a woman into any situation or circumstance and she will find her way, lead the way, and light the way. She follow the person where she gets her glow from in Heaven, wherever He may lead. She is wild, she is free, she will not be contained, and she cannot be anything less than exactly who her Creator made a.) because she is too busy being a cape crusader for her little one and b.) she has no time or desire to be anything less than what Christ is building her to be. She knows the life, light, and mind of the little one she was entrusted with depend on it. She depends on Him, just as she knows her child depends on her, because she has encountered His life changing love and thats what she desires to bestow on her offspring. Her child is the priority, mission, goal, and destiny. This makes her something no human power alone could ever replicate or dictate. This Spirit led instinct to follow her Creator, and raise up her child to do the same makes her a force no human efforts could ever change or contain. Much like the power of a tornado, or a hurricane, she is a storm, buckeling, bending a knee only to her Father in Heaven, never due to her burdens, or the trials this life brings. She is steadfast, planted, firm, and produces fruits from the heart because it is filled with Gods everlasting grace and mercy..." πŸ•Š
  • "...whenever a miracle occurs it makes ripples, waves, people notice, and lives are changed! The miracle of the single mother fueled by a burning desire to seek God’s face even in the midst of all their adversities, is a flame herself. A bright light, taking your future and shining on it so you can finally see. You can place a candle into a dim room, no matter how dark, and it will never fail to shine. Just as you can place this walking miracle of a woman into any situation or circumstance and she will find her way, lead the way, and light the way. She follow the person where she gets her glow from in Heaven, wherever He may lead. She is wild, she is free, she will not be contained, and she cannot be anything less than exactly who her Creator made a.) because she is too busy being a cape crusader for her little one and b.) she has no time or desire to be anything less than what Christ is building her to be. She knows the life, light, and mind of the little one she was entrusted with depend on it. She depends on Him, just as she knows her child depends on her, because she has encountered His life changing love and thats what she desires to bestow on her offspring. Her child is the priority, mission, goal, and destiny. This makes her something no human power alone could ever replicate or dictate. This Spirit led instinct to follow her Creator, and raise up her child to do the same makes her a force no human efforts could ever change or contain. Much like the power of a tornado, or a hurricane, she is a storm, buckeling, bending a knee only to her Father in Heaven, never due to her burdens, or the trials this life brings. She is steadfast, planted, firm, and produces fruits from the heart because it is filled with Gods everlasting grace and mercy..." πŸ•Š
  •  24,290  184  12 May, 2019
  • Almost 7 months ago I met the woman God created me for & has been preparing me for. Both of us are patients at Stanford University & our lives collided when I was admitted due to a last minute emergency... She is an artist, a warrior, & a miracle, with a heart in full pursuit of Jesus Christ. I've dedicated an entire chapter in my book I'm writing about her & still feel that is not nearly enough to fully narrate our story & her heart... Life will never be the same... God is so good... β€πŸ•Š (Side note: the ice cream is vegan & the face tattoo is from a children's hospital event πŸ˜‚) October 15th 2018 πŸ•Š
  • Almost 7 months ago I met the woman God created me for & has been preparing me for. Both of us are patients at Stanford University & our lives collided when I was admitted due to a last minute emergency... She is an artist, a warrior, & a miracle, with a heart in full pursuit of Jesus Christ. I've dedicated an entire chapter in my book I'm writing about her & still feel that is not nearly enough to fully narrate our story & her heart... Life will never be the same... God is so good... β€πŸ•Š (Side note: the ice cream is vegan & the face tattoo is from a children's hospital event πŸ˜‚) October 15th 2018 πŸ•Š
  •  87,638  1,607  4 May, 2019
  • Thank you @heartsupport and @jakeluhrsabr for having me in Austin, Texas this past weekend. Thank you even more for not just "raising awareness" on issues such as mental illness, addiction, depression, suicide, etc. But for actually TAKING ACTION in making a difference and helping people that are struggling with these various issues. Thank you for being there for them and loving them no matter their skin color, background, political views, and gender or religious affiliations. I've personally battled with depression, addiction, and even attempted suicide, and ALL of us know SOMEONE affected by at least one of these things as well. By the grace of God He removed my heart of stone, and changed my heart forever because of what Jesus did on the cross, which was the ultimate display of love. All our issues start with the heart, if yours needs help or even just some company, then please visit their website on the @heartsupport page or if you are interested in helping them help others in need ❀ "God does not see as man sees; for man looks at the outward appearance, but the Lord looks at the heart.” -1 Samuel 16:7 πŸ•Š
  • Thank you @heartsupport and @jakeluhrsabr for having me in Austin, Texas this past weekend. Thank you even more for not just "raising awareness" on issues such as mental illness, addiction, depression, suicide, etc. But for actually TAKING ACTION in making a difference and helping people that are struggling with these various issues. Thank you for being there for them and loving them no matter their skin color, background, political views, and gender or religious affiliations. I've personally battled with depression, addiction, and even attempted suicide, and ALL of us know SOMEONE affected by at least one of these things as well. By the grace of God He removed my heart of stone, and changed my heart forever because of what Jesus did on the cross, which was the ultimate display of love. All our issues start with the heart, if yours needs help or even just some company, then please visit their website on the @heartsupport page or if you are interested in helping them help others in need ❀ "God does not see as man sees; for man looks at the outward appearance, but the Lord looks at the heart.” -1 Samuel 16:7 πŸ•Š
  •  81,759  929  27 March, 2019
  • Unapologetically joyful! Even after 24 days combined hospitalized at Stanford over the period of 3 stays, which all came unexpectedly. Only planned to be in the states for just about that long when I left Costa Rica almost 3 months ago! Palo Alto California, speaking at the annual Marfan Medical Conference & presenting the "Heart Of It All" award that was presented to me last year. Las Vegas Nevada, speaking at schools, churches, spoken word/hip hop/live art event, & spending most of my time working on new music and helping two other friends with their projects as well. Orange County California, to get some tattoo time in, BearFlag, KWAVE radio interview, RVCA warehouse visit, some filming, photo shoots, & 2 really exciting meetings. Every city, so grateful to see so many of my friends after being away so long, still didn't get to see them all. Then finally San Diego speaking in Chula Vista & getting my Lolitas burrito fix. The next day I was meant to fly back here but I called my doctor & he told me not to leave the country, changed my flight, & went back up to Stanford. While there, it ended up being a literal life changing week for me, my future, health & heart... Incredible how God opens & closes doors that you would have never guessed would be possible. I was also able to make a dear friend of mine "CJ", Charis, Charles, funeral in Oakland the day I was discharged. He was a heart transplant patient & we met at Stanford during my first stay there. He called me one night at 2am & we talked for 2 hours while I wrote a song on piano for him to fall asleep to. That was the last time we ever spoke. Kept in contact with his mother every day until he went to be with the Lord a week later. Was blessed to be able to attend his service & play his song during the celebration of his life & be with his beautiful family. My heart is full even amidst all this... God has blessed me so much through these recent trials. One blessing in particular has changed everything for me, more on that soon enough. Happy to be back in the jungle of Costa Rica, but not for long! πŸ•ŠπŸ‘ŠπŸΌ (Also, link in my bio for my "White Chair Documentary" that was just released)
  • Unapologetically joyful! Even after 24 days combined hospitalized at Stanford over the period of 3 stays, which all came unexpectedly. Only planned to be in the states for just about that long when I left Costa Rica almost 3 months ago! Palo Alto California, speaking at the annual Marfan Medical Conference & presenting the "Heart Of It All" award that was presented to me last year. Las Vegas Nevada, speaking at schools, churches, spoken word/hip hop/live art event, & spending most of my time working on new music and helping two other friends with their projects as well. Orange County California, to get some tattoo time in, BearFlag, KWAVE radio interview, RVCA warehouse visit, some filming, photo shoots, & 2 really exciting meetings. Every city, so grateful to see so many of my friends after being away so long, still didn't get to see them all. Then finally San Diego speaking in Chula Vista & getting my Lolitas burrito fix. The next day I was meant to fly back here but I called my doctor & he told me not to leave the country, changed my flight, & went back up to Stanford. While there, it ended up being a literal life changing week for me, my future, health & heart... Incredible how God opens & closes doors that you would have never guessed would be possible. I was also able to make a dear friend of mine "CJ", Charis, Charles, funeral in Oakland the day I was discharged. He was a heart transplant patient & we met at Stanford during my first stay there. He called me one night at 2am & we talked for 2 hours while I wrote a song on piano for him to fall asleep to. That was the last time we ever spoke. Kept in contact with his mother every day until he went to be with the Lord a week later. Was blessed to be able to attend his service & play his song during the celebration of his life & be with his beautiful family. My heart is full even amidst all this... God has blessed me so much through these recent trials. One blessing in particular has changed everything for me, more on that soon enough. Happy to be back in the jungle of Costa Rica, but not for long! πŸ•ŠπŸ‘ŠπŸΌ (Also, link in my bio for my "White Chair Documentary" that was just released)
  •  50,191  665  27 October, 2018
  • I was supposed to be on a flight back to Costa Rica right now, but my body had other plans... I was texting my doctor on Friday morning discussing some of the gnarly symptoms I've been struggling with the past few days... he called me right after reading them saying "do not leave the country, get to the hospital immediately." (( in the past he has also told me "don't go the the emergency room, SUCK IT UP,  you'll be fine!" )) haha so I trust his medical assessments thoroughly after our relationship these past 7 years of working together. I've been back in Stanford since yesterday morning... Won't go into detail about what they think it could be, but have a few days of testing, testing, and more testing to find out exactly what's happening. No matter what though, I'm at peace knowing I'm in God's hands as I face this new obstacle πŸ•ŠπŸ‘ŠπŸΌπŸ–€ @themarfanfoundation #marfansyndrome #chronicillness #chronicpain #nojoke #anotherbattle #GodsWill #GodsPlan
  • I was supposed to be on a flight back to Costa Rica right now, but my body had other plans... I was texting my doctor on Friday morning discussing some of the gnarly symptoms I've been struggling with the past few days... he called me right after reading them saying "do not leave the country, get to the hospital immediately." (( in the past he has also told me "don't go the the emergency room, SUCK IT UP, you'll be fine!" )) haha so I trust his medical assessments thoroughly after our relationship these past 7 years of working together. I've been back in Stanford since yesterday morning... Won't go into detail about what they think it could be, but have a few days of testing, testing, and more testing to find out exactly what's happening. No matter what though, I'm at peace knowing I'm in God's hands as I face this new obstacle πŸ•ŠπŸ‘ŠπŸΌπŸ–€ @themarfanfoundation #marfansyndrome #chronicillness #chronicpain #nojoke #anotherbattle #GodsWill #GodsPlan
  •  98,383  3,384  14 October, 2018
  • "Don't turn your back on me, I won't be ignored." Always on my mind @chesterbe πŸ’œπŸ–€ @linkinpark
  • "Don't turn your back on me, I won't be ignored." Always on my mind @chesterbe πŸ’œπŸ–€ @linkinpark
  •  74,524  2,307  28 August, 2018
  • Day eight update: down to only two IV's in my arms! (have had over 30 "pokes" this week alone haha) Because of my extensive medical experiences over my life my veins are extremely hard to find, get blood, or even keep a line in, because they rupture so easily or just won't take a poke at all. My most crucial areas for contrast lines, IV's, or even the dreaded blood draws every 4 hours, are all hardened with scar tissue. Many times I have to resort to lines in my feet or neck or ultrasound. Add a connective tissue disorder like Marfans Syndrome to the mix? Nightmare. Always my joke with nurses "let's see if you can get an IV to stay in under 8 sticks"... If you frequent hospitals or have multiple treatments monthly you understand... As of yesterday the pouches of fluid in my forehead, eyebrows, sides of head, and skull have been completely drained and removed! Very excited about that, but unfortunately even with all the swelling gone the pressure & pain in skull and spine remains the same. I still have another day of intrevenuous antibiotic treatment, and two more days of similar steroid treatments as well. Will know next steps when those are completed. My specialists also put me on a medication a few days ago that slows the production of whatever enzymes that creates cerebrospinal fluid production in my body, which has proven beneficial to not only the swelling in skull but the pain as well. Tomorrow I will start back with more testing and begin to remove other variables and possibilities of what could be the root of the problem, leak, draining, etc. 
For many that battle with chronic illness this is just another walk in the park, another hill to climb. It is frustrating at times but I am at peace. Words cannot express, you will never truly understand how much it means to me that all of you have stood by my side even when these same health issues took me from Mice. This small bout came out of nowhere and I will leave it behind just as quickly. God has been working immensely in my life and I have been working on new things that I've poured my entire heart into and cannot wait to share them with you. One step at a time. Grateful. πŸ‘ŠπŸΌπŸ•Š
  • Day eight update: down to only two IV's in my arms! (have had over 30 "pokes" this week alone haha) Because of my extensive medical experiences over my life my veins are extremely hard to find, get blood, or even keep a line in, because they rupture so easily or just won't take a poke at all. My most crucial areas for contrast lines, IV's, or even the dreaded blood draws every 4 hours, are all hardened with scar tissue. Many times I have to resort to lines in my feet or neck or ultrasound. Add a connective tissue disorder like Marfans Syndrome to the mix? Nightmare. Always my joke with nurses "let's see if you can get an IV to stay in under 8 sticks"... If you frequent hospitals or have multiple treatments monthly you understand... As of yesterday the pouches of fluid in my forehead, eyebrows, sides of head, and skull have been completely drained and removed! Very excited about that, but unfortunately even with all the swelling gone the pressure & pain in skull and spine remains the same. I still have another day of intrevenuous antibiotic treatment, and two more days of similar steroid treatments as well. Will know next steps when those are completed. My specialists also put me on a medication a few days ago that slows the production of whatever enzymes that creates cerebrospinal fluid production in my body, which has proven beneficial to not only the swelling in skull but the pain as well. Tomorrow I will start back with more testing and begin to remove other variables and possibilities of what could be the root of the problem, leak, draining, etc.
    For many that battle with chronic illness this is just another walk in the park, another hill to climb. It is frustrating at times but I am at peace. Words cannot express, you will never truly understand how much it means to me that all of you have stood by my side even when these same health issues took me from Mice. This small bout came out of nowhere and I will leave it behind just as quickly. God has been working immensely in my life and I have been working on new things that I've poured my entire heart into and cannot wait to share them with you. One step at a time. Grateful. πŸ‘ŠπŸΌπŸ•Š
  •  84,784  2,436  22 hours ago