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Latest #theluckyfew Posts

  • CHRISTMAS 🎄
  • CHRISTMAS 🎄

  •  27  5  1 hour ago
  • #LightTheWorld Dec 14=plan a one on one activity with a friend or loved one. 
I was fortunate to receive 2 tickets to the Mormon Tabernacle Choir’s annual Christmas concert.  I immediately invited Leslie and told her to save the date. I love that the suggestion to take time for one on one attention fell on the night we had tickets.  It reminded me to focus on how much I love spending time with just Leslie.  I am grateful for the memories I made of us two sisters taking care of each other , listening to beautiful and moving music, taking about our struggles, and just being best friends. A night for my memory box for sure.

#sisterlove #lovethisconcert #theluckyfew #thinkability #christlikeloveinaction  #soooomuchwalking #feelingold #oneononetime #selfiesareharderthantheylook
  • #LightTheWorld Dec 14=plan a one on one activity with a friend or loved one.
    I was fortunate to receive 2 tickets to the Mormon Tabernacle Choir’s annual Christmas concert. I immediately invited Leslie and told her to save the date. I love that the suggestion to take time for one on one attention fell on the night we had tickets. It reminded me to focus on how much I love spending time with just Leslie. I am grateful for the memories I made of us two sisters taking care of each other , listening to beautiful and moving music, taking about our struggles, and just being best friends. A night for my memory box for sure.

    #sisterlove #lovethisconcert #theluckyfew #thinkability #christlikeloveinaction #soooomuchwalking #feelingold #oneononetime #selfiesareharderthantheylook

  •  4  0  1 hour ago
  • About two months after we had Alice, someone told me that it was very impressive how much I had simply “rolled with” her diagnosis and immediately accepted it.  She meant it as a compliment and I understood that.  But I was quick to correct her.  I did not “roll with” Alice’s diagnosis and I don’t think that I was “quick to accept it.” While it was nice that she thought so, the last thing I wanted to do was paint an incorrect picture of the way things actually were.

That day, I asked Tim to watch the girls, I went to Panera and I typed out our entire diagnosis story and all of the many intense feelings and emotions that went along with it.  You can read it via the link in my bio.  I did not leave anything out when it came to my shock, devastation and hopelessness upon hearing the words, “We believe your baby has Down syndrome.” Everything I wrote was real, raw and honest.  I didn’t sugarcoat anything because I never wanted someone to hear my story and think that I was told that she had Down syndrome and immediately felt acceptance or joy.  Yes, I am there now... but it was not immediately that way.

Being told that your child has Down syndrome is an experience you never forget.  In the moment, the challenge ahead of you seems insurmountable.  You think this couldn’t be happening because you’re not the right person for the journey.  You don’t know what the heck you are doing with this, so how could God give you this life?  But as time goes on and you figure it out, you not only feel more prepared for this journey but for ANY journey put in front of you.

This experience changes you, opens your eyes to things you have always seen but never really noticed and makes you realize strength you didn’t know you had inside you.

So no, I did not immediately accept Alice’s diagnosis and I never want it to come off that way because it’s not reality.  But I can definitely say that now, 20 months later, I’ve not only accepted it but I feel so much gratitude about being chosen for this unique ride.  I love Alice so much and can’t imagine life any other way.  I have learned more from this journey than from anything else.  I just wish more people could experience it. 💙💛
  • About two months after we had Alice, someone told me that it was very impressive how much I had simply “rolled with” her diagnosis and immediately accepted it. She meant it as a compliment and I understood that. But I was quick to correct her. I did not “roll with” Alice’s diagnosis and I don’t think that I was “quick to accept it.” While it was nice that she thought so, the last thing I wanted to do was paint an incorrect picture of the way things actually were.

    That day, I asked Tim to watch the girls, I went to Panera and I typed out our entire diagnosis story and all of the many intense feelings and emotions that went along with it. You can read it via the link in my bio. I did not leave anything out when it came to my shock, devastation and hopelessness upon hearing the words, “We believe your baby has Down syndrome.” Everything I wrote was real, raw and honest. I didn’t sugarcoat anything because I never wanted someone to hear my story and think that I was told that she had Down syndrome and immediately felt acceptance or joy. Yes, I am there now... but it was not immediately that way.

    Being told that your child has Down syndrome is an experience you never forget. In the moment, the challenge ahead of you seems insurmountable. You think this couldn’t be happening because you’re not the right person for the journey. You don’t know what the heck you are doing with this, so how could God give you this life? But as time goes on and you figure it out, you not only feel more prepared for this journey but for ANY journey put in front of you.

    This experience changes you, opens your eyes to things you have always seen but never really noticed and makes you realize strength you didn’t know you had inside you.

    So no, I did not immediately accept Alice’s diagnosis and I never want it to come off that way because it’s not reality. But I can definitely say that now, 20 months later, I’ve not only accepted it but I feel so much gratitude about being chosen for this unique ride. I love Alice so much and can’t imagine life any other way. I have learned more from this journey than from anything else. I just wish more people could experience it. 💙💛

  •  5  1  1 hour ago
  • Went to the church Christmas play my siblings, mommy, and daddy were in it. I knew Donald was my daddy cause he’s the only one I let hold me anymore not even my mommy (Olaf) even out of costume. #straightupdaddysboy #imhisminime #daddysboy #theluckyfew
  • Went to the church Christmas play my siblings, mommy, and daddy were in it. I knew Donald was my daddy cause he’s the only one I let hold me anymore not even my mommy (Olaf) even out of costume. #straightupdaddysboy #imhisminime #daddysboy #theluckyfew

  •  2  0  2 hours ago
  • These two are my world ☺️ Having a sibling with special needs has been the best thing ever for our son. His heart is so full of love ❤️
  • These two are my world ☺️ Having a sibling with special needs has been the best thing ever for our son. His heart is so full of love ❤️

  •  15  1  2 hours ago
  • This is one of the many reasons why we do what we do. Inspiration, yes's (all the types) and hope. So much hope. Thank you @theluckyfewofficial for all that you do!
Reposted from @theluckyfewofficial "They almost didn't place her with an adoptive family, she was that sick. We found out about her when she was only three months old. She'd already had a heart surgery and would need another heart surgery at five months old. She needed oxygen 24/7 for a rare and incurable lung disease. We met with her cardiologist before deciding to adopt her or not. He told us things did not look good. Besides oxygen and medication there was nothing we could do to fix her lungs. He said she might live to be about eight years old. Fast forward over two years, to December 15, 2010. Her heart surgery had been successful, we had gotten used to, but continued to loath, her oxygen and medications. But we held tight to hope...always so much hope. We waited in her pulmonologist's office that afternoon when the door flew open and her doctor said to us, "her pulmonary hypertension is gone. Take off her oxygen!" We fell into each other's arms and wept tears of gratitude and joy. ❤️
That was nine years ago today. Macyn Hope, my scariest and best yes! A scary yes that has lead to a thousand more. I am full of gratitude as I reflect on all that has taken place and wait with hopeful anticipation on all that’s to come. What scary yes is sitting on your tongue just waiting to make its way into the world?" #frontrowseattomiracles #theluckyfew
  • This is one of the many reasons why we do what we do. Inspiration, yes's (all the types) and hope. So much hope. Thank you @theluckyfewofficial for all that you do!
    Reposted from @theluckyfewofficial "They almost didn't place her with an adoptive family, she was that sick. We found out about her when she was only three months old. She'd already had a heart surgery and would need another heart surgery at five months old. She needed oxygen 24/7 for a rare and incurable lung disease. We met with her cardiologist before deciding to adopt her or not. He told us things did not look good. Besides oxygen and medication there was nothing we could do to fix her lungs. He said she might live to be about eight years old. Fast forward over two years, to December 15, 2010. Her heart surgery had been successful, we had gotten used to, but continued to loath, her oxygen and medications. But we held tight to hope...always so much hope. We waited in her pulmonologist's office that afternoon when the door flew open and her doctor said to us, "her pulmonary hypertension is gone. Take off her oxygen!" We fell into each other's arms and wept tears of gratitude and joy. ❤️
    That was nine years ago today. Macyn Hope, my scariest and best yes! A scary yes that has lead to a thousand more. I am full of gratitude as I reflect on all that has taken place and wait with hopeful anticipation on all that’s to come. What scary yes is sitting on your tongue just waiting to make its way into the world?" #frontrowseattomiracles #theluckyfew

  •  5  0  3 hours ago
  • Carter & his kitty! 😺
  • Carter & his kitty! 😺

  •  26  1  4 hours ago
  • This relationship is off to a great start✨
#sweetsiblings 💙💛💙
  • This relationship is off to a great start✨
    #sweetsiblings 💙💛💙

  •  195  9  4 hours ago
  • First three word combination?! (😱): “Read a book” 📚 One of these days I’ll catch it on camera... for now I’m just enjoying hearing her use it to get out of bedtime 😅
  • First three word combination?! (😱): “Read a book” 📚 One of these days I’ll catch it on camera... for now I’m just enjoying hearing her use it to get out of bedtime 😅

  •  17  1  4 hours ago
  • UPDATE:⁣
⁣
When you haven't held your baby in 4 days, it makes you go crazy. Like, OMG, I want to hold her with every ounce of my being.
⁣
I would push the hospital staff harder on holding her (because I have no problem pushing for what I think my baby needs) BUT those two drainage tubes you see coming out of her chest in all the pictures...well, when they move, they hit nerves that create intense pain. It happens sometimes when she's positionally moved in bed and I just can't put her through that. ⁣
⁣
The good news is that there is a very high probability that those tubes are being removed tomorrow. And with that, we can FINALLY hold our sweet girl. 💕⁣
⁣
The other good news is that we started feeding today. Harper's appetite is lower (to be expected) and her throat is still a little raw with swallowing BUT she drank a total of about 3 oz of breastmilk (via bottle) over the course of the afternoon. She kept it down and tolerated the fat fine, which rules out both aspiration in the lungs and chylothorax. Two hurdles!⁣ We will be able to get back to breastfeeding soon, I hope!
⁣
MORE good news is that we got rid of 3 lines today, one that was an arterial line in her wrist and very bothersome for Harper. That one had stitches to keep it in and it was very painful coming out. 😖⁣
⁣
Harper is so strong though. No child should have to endure the pain that she has had to this week but she's showing us all what she's made of and how resilient she is. Dang, I love her so much. ⁣
⁣
We are moving forward with strength and speed 💪🏽⁣ ⁣
Thanks so much for your continued support, prayers, messages, light and for sharing her story, too! ❤️⁣
⁣
#HarperStrong #DownSyndrome #Trisomy21 #TheLuckyFew #CongenitalHeartDefect #CHD #HeartWarrior #AVSD  #AVCanalDefect #OpenHeartSurgery⁣
  • UPDATE:⁣

    When you haven't held your baby in 4 days, it makes you go crazy. Like, OMG, I want to hold her with every ounce of my being.

    I would push the hospital staff harder on holding her (because I have no problem pushing for what I think my baby needs) BUT those two drainage tubes you see coming out of her chest in all the pictures...well, when they move, they hit nerves that create intense pain. It happens sometimes when she's positionally moved in bed and I just can't put her through that. ⁣

    The good news is that there is a very high probability that those tubes are being removed tomorrow. And with that, we can FINALLY hold our sweet girl. 💕⁣

    The other good news is that we started feeding today. Harper's appetite is lower (to be expected) and her throat is still a little raw with swallowing BUT she drank a total of about 3 oz of breastmilk (via bottle) over the course of the afternoon. She kept it down and tolerated the fat fine, which rules out both aspiration in the lungs and chylothorax. Two hurdles!⁣ We will be able to get back to breastfeeding soon, I hope!

    MORE good news is that we got rid of 3 lines today, one that was an arterial line in her wrist and very bothersome for Harper. That one had stitches to keep it in and it was very painful coming out. 😖⁣

    Harper is so strong though. No child should have to endure the pain that she has had to this week but she's showing us all what she's made of and how resilient she is. Dang, I love her so much. ⁣

    We are moving forward with strength and speed 💪🏽⁣ ⁣
    Thanks so much for your continued support, prayers, messages, light and for sharing her story, too! ❤️⁣

    #HarperStrong #DownSyndrome #Trisomy21 #TheLuckyFew #CongenitalHeartDefect #CHD #HeartWarrior #AVSD #AVCanalDefect #OpenHeartSurgery

  •  109  12  4 hours ago
  • Christmas with cousins and more!
  • Christmas with cousins and more!

  •  83  1  5 hours ago
  • He was thrilled to celebrate his birthday with his family and he is always surprising me with new bravery and strength. 💪🏾 We closed the place down so we sang to him outside. Four more days until this boy is SIX. 🥳❤️🙌
#theluckyfew #morealikethandifferent #happybirthday
  • He was thrilled to celebrate his birthday with his family and he is always surprising me with new bravery and strength. 💪🏾 We closed the place down so we sang to him outside. Four more days until this boy is SIX. 🥳❤️🙌
    #theluckyfew #morealikethandifferent #happybirthday

  •  16  0  5 hours ago
  • Alex doesn’t really care about movies, but he does care about being next to his brother and I think it’s safe to say Simon cares about Alex too 😊 #brotherskeeper #brotherlylove #theluckyfew
  • Alex doesn’t really care about movies, but he does care about being next to his brother and I think it’s safe to say Simon cares about Alex too 😊 #brotherskeeper #brotherlylove #theluckyfew

  •  220  12  6 hours ago
  • Contrary to belief, Enzo didn’t mind Santa, he minded his snacks being taken away to sit with Santa. 😂🎄🎅🏼
  • Contrary to belief, Enzo didn’t mind Santa, he minded his snacks being taken away to sit with Santa. 😂🎄🎅🏼

  •  68  9  6 hours ago
  • Here’s Scout playing with his big bro. “Tossing” him on the couch and thinking it’s hysterical. Scout likes to fool around and play as much as every other kid. He’s silly, and serious, angry at times and awfully affectionate when he wants to be. His emotions range like everyone else’s. People have questioned if someone with DS can have enough emotional depth to feel true love. In the past, this has been the guise under which much discrimination has been carried out. How can someone fairly judge another person’s emotion, thoughts, love? If you know Scout, you’ve seen love in action. If you’re lucky enough to be loved by Scout, you know it’s the real thing (baby). ❤️
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#specialneeds #loveneverfails #downsyndromelove #theluckyfew #trisomy21 #homiewithanextrachromie #downsyndromerocks #advocatelikeamother
  • Here’s Scout playing with his big bro. “Tossing” him on the couch and thinking it’s hysterical. Scout likes to fool around and play as much as every other kid. He’s silly, and serious, angry at times and awfully affectionate when he wants to be. His emotions range like everyone else’s. People have questioned if someone with DS can have enough emotional depth to feel true love. In the past, this has been the guise under which much discrimination has been carried out. How can someone fairly judge another person’s emotion, thoughts, love? If you know Scout, you’ve seen love in action. If you’re lucky enough to be loved by Scout, you know it’s the real thing (baby). ❤️
    .
    .
    .
    .
    #specialneeds #loveneverfails #downsyndromelove #theluckyfew #trisomy21 #homiewithanextrachromie #downsyndromerocks #advocatelikeamother

  •  23  2  6 hours ago
  • your eyes, blue moons
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  • your eyes, blue moons



  •  131  8  6 hours ago

Top #theluckyfew Posts

  • This video is one of my favs ! Look how little exton was ! Where does time go ??? Now he is about to be a threenager and is too cool to look at me like that anymore 😂😂😂😂. But here is proof I use to be his person ! Now I’ve been kicked aside for Daddy ! Can y’all believe it ?!?! #extraexton #downsyndrome #t21 #theluckyfew #homiewithanextrachromie
  • This video is one of my favs ! Look how little exton was ! Where does time go ??? Now he is about to be a threenager and is too cool to look at me like that anymore 😂😂😂😂. But here is proof I use to be his person ! Now I’ve been kicked aside for Daddy ! Can y’all believe it ?!?! #extraexton #downsyndrome #t21 #theluckyfew #homiewithanextrachromie

  •  2,005  84  14 hours ago
  • One of our Christmas traditions is an advent calendar that I have had since I was a little girl.  I love seeing the kids excitement in hanging up the miniature ornaments on the tree every day.  The other day I jokingly asked them who was going to hang the ornaments up once they are all old and gone, to which one replied, “Colt and Nic of course” and another added, “and I’m never leaving Colt and Nic, remember? So I’ll be here too!” ☺️❤️
.

Only God knows what the future holds for any of our children, but I  am sure thankful for the gifts that He has given us in each of them, with the added bonus of being able to extend that childhood joy just a little bit longer! ❤️❤️ #siblinglove
. **Thank you for these cute shirts @kristinslovelife *** #Godisgood #family #childhoodmemories #theluckyfew #downrightwonderful
  • One of our Christmas traditions is an advent calendar that I have had since I was a little girl. I love seeing the kids excitement in hanging up the miniature ornaments on the tree every day. The other day I jokingly asked them who was going to hang the ornaments up once they are all old and gone, to which one replied, “Colt and Nic of course” and another added, “and I’m never leaving Colt and Nic, remember? So I’ll be here too!” ☺️❤️
    .

    Only God knows what the future holds for any of our children, but I am sure thankful for the gifts that He has given us in each of them, with the added bonus of being able to extend that childhood joy just a little bit longer! ❤️❤️ #siblinglove
    . **Thank you for these cute shirts @kristinslovelife *** #Godisgood #family #childhoodmemories #theluckyfew #downrightwonderful

  •  4,969  139  9 December, 2019
  • They almost didn't place her with an adoptive family, she was that sick. We found out about her when she was only three months old. She'd already had a heart surgery and would need another heart surgery at five months old. She needed oxygen 24/7 for a rare and incurable lung disease. We met with her cardiologist before deciding to adopt her or not. He told us things did not look good. Besides oxygen and medication there was nothing we could do to fix her lungs. He said she might live to be about eight years old. Fast forward over two years, to December 15, 2010. Her heart surgery had been successful, we had gotten used to, but continued to loath, her oxygen and medications. But we held tight to hope...always so much hope. We waited in her pulmonologist's office that afternoon when the door flew open and her doctor said to us, "her pulmonary hypertension is gone. Take off her oxygen!" We fell into each other's arms and wept tears of gratitude and joy. ❤️
That was nine years ago today. Macyn Hope, my scariest and best yes! A scary yes that has lead to a thousand more. I am full of gratitude as I reflect on all that has taken place and wait with hopeful anticipation on all that’s to come. What scary yes is sitting on your tongue just waiting to make its way into the world? #frontrowseattomiracles #theluckyfew
  • They almost didn't place her with an adoptive family, she was that sick. We found out about her when she was only three months old. She'd already had a heart surgery and would need another heart surgery at five months old. She needed oxygen 24/7 for a rare and incurable lung disease. We met with her cardiologist before deciding to adopt her or not. He told us things did not look good. Besides oxygen and medication there was nothing we could do to fix her lungs. He said she might live to be about eight years old. Fast forward over two years, to December 15, 2010. Her heart surgery had been successful, we had gotten used to, but continued to loath, her oxygen and medications. But we held tight to hope...always so much hope. We waited in her pulmonologist's office that afternoon when the door flew open and her doctor said to us, "her pulmonary hypertension is gone. Take off her oxygen!" We fell into each other's arms and wept tears of gratitude and joy. ❤️
    That was nine years ago today. Macyn Hope, my scariest and best yes! A scary yes that has lead to a thousand more. I am full of gratitude as I reflect on all that has taken place and wait with hopeful anticipation on all that’s to come. What scary yes is sitting on your tongue just waiting to make its way into the world? #frontrowseattomiracles #theluckyfew

  •  3,856  58  8 hours ago
  • Glad Lucia♥️ Livius var väldigt nöjd med sin dag då han varit och lussat på ett ålderdomshem med skolan! 
Den lilla tomten däremot är genomförkyld, så hon har varit hemma och myst med mig! Men trots förkylning bjöd hon på ett leende när vi tog kort:)🎅🏼🤶🏻 #liviusandflorence
  • Glad Lucia♥️ Livius var väldigt nöjd med sin dag då han varit och lussat på ett ålderdomshem med skolan!
    Den lilla tomten däremot är genomförkyld, så hon har varit hemma och myst med mig! Men trots förkylning bjöd hon på ett leende när vi tog kort:)🎅🏼🤶🏻 #liviusandflorence

  •  854  93  13 December, 2019
  • Okay, I know it seems like the August show over here lately but his birthday followed by his Christmas performance for school plus his face equals #theaugustshow! Friends! Let me just share with you, this morning he had his kinder Christmas performance and it was GOLD! Freaking August! He played the part of one of the children and he slayed it #likeaboss! He hit every mark, said every word and sang every line. It was a sparkle and shine kind of moment. A win for inclusion! 
But here’s the thing, he’s not my first. I’ve been in this Down syndrome/inclusion kind of space for about 8 years. This means I know some things and still have a lot to learn. What I know is this: a lot of the kiddos who have disabilities and an opportunity to be in a GenEd holiday program may not be able to hit their mark, say their lines and sing every song without some additional supports and modifications. In fact, some kids with disabilities may not be able to perform in the holiday program ‘successfully’ at all. But you know what? No matter what category any child finds themselves in, they are worthy and deserving of belonging and of being in a holiday program with the other kindergarteners (or any grade). Inclusion wins when it happens, and when inclusion happens, everyone wins. #inclusionmatters #augustryker #theluckyfew
  • Okay, I know it seems like the August show over here lately but his birthday followed by his Christmas performance for school plus his face equals #theaugustshow! Friends! Let me just share with you, this morning he had his kinder Christmas performance and it was GOLD! Freaking August! He played the part of one of the children and he slayed it #likeaboss! He hit every mark, said every word and sang every line. It was a sparkle and shine kind of moment. A win for inclusion!
    But here’s the thing, he’s not my first. I’ve been in this Down syndrome/inclusion kind of space for about 8 years. This means I know some things and still have a lot to learn. What I know is this: a lot of the kiddos who have disabilities and an opportunity to be in a GenEd holiday program may not be able to hit their mark, say their lines and sing every song without some additional supports and modifications. In fact, some kids with disabilities may not be able to perform in the holiday program ‘successfully’ at all. But you know what? No matter what category any child finds themselves in, they are worthy and deserving of belonging and of being in a holiday program with the other kindergarteners (or any grade). Inclusion wins when it happens, and when inclusion happens, everyone wins. #inclusionmatters #augustryker #theluckyfew

  •  4,254  38  14 December, 2019