#disability Instagram Photos & Videos

disability - 912.9k posts

Latest #disability Posts

  • Following today's annual summit, our board members joined together for a debriefing and planning dinner. Looking forward to a great year of working together!

#RespectTheAbility #RepresentationMatters #IncludeUs #Disability #inclusion 
Image description: a group of adult men and women seated in chairs and wheelchairs and standing, posed and smiling for the camera, behind a large dining room table.
  • Following today's annual summit, our board members joined together for a debriefing and planning dinner. Looking forward to a great year of working together!

    #RespectTheAbility #RepresentationMatters #IncludeUs #Disability #inclusion
    Image description: a group of adult men and women seated in chairs and wheelchairs and standing, posed and smiling for the camera, behind a large dining room table.
  •  3  0  8 minutes ago
  • Relationships.
An already effort filled and often difficult part of life,
Though absolutely worth it.
Made even more difficult by the random flares and brain fog.
By plans  needing to be canceled at the last minute or the impossibility of focusing on conversation.
Friends or lovers often get frustrated at the inconsistency or unavailability.
Most not bothering to stay and to understand.
This can be seen as a failure or a misfortune,
Piling on to the already long list of negatives, 
Or it could be seen as an advantage,
The fake people who can't see the worth of the beautiful soul in front of them,
Take themselves out before the attachment grows too real. 
And the real ones who see the true person rather than the disorder stay,
Blessing life in an absolutely beautiful way.
•
Thank you to this lovely lady and a few others for sticking by my side through this whole health mess, you guys mean the absolute world to me and you seriously are my rock.❤️ •
Today was a very high pain day, I barely held down a smoothie and had to crawl to the bath and I'm not sure that this post makes any sense , but hey, I took care of myself, and the rain was absolutely gorgeous and worth it!
  • Relationships.
    An already effort filled and often difficult part of life,
    Though absolutely worth it.
    Made even more difficult by the random flares and brain fog.
    By plans needing to be canceled at the last minute or the impossibility of focusing on conversation.
    Friends or lovers often get frustrated at the inconsistency or unavailability.
    Most not bothering to stay and to understand.
    This can be seen as a failure or a misfortune,
    Piling on to the already long list of negatives,
    Or it could be seen as an advantage,
    The fake people who can't see the worth of the beautiful soul in front of them,
    Take themselves out before the attachment grows too real.
    And the real ones who see the true person rather than the disorder stay,
    Blessing life in an absolutely beautiful way.

    Thank you to this lovely lady and a few others for sticking by my side through this whole health mess, you guys mean the absolute world to me and you seriously are my rock.❤️ •
    Today was a very high pain day, I barely held down a smoothie and had to crawl to the bath and I'm not sure that this post makes any sense , but hey, I took care of myself, and the rain was absolutely gorgeous and worth it!
  •  2  3  14 minutes ago
  • Hello you 👋 
Do you live in #colac and are you looking for a #career change or to #upskill? 
Well, look no further! We are now taking enrolments in Colac. 
Contact us today to enrol! 
TOID 5553 
This training is delivered with Victorian and Government Funding for eligible participants.
We encourage individuals with disabilities to apply. genU Training is a division of Karingal St Laurence
Limited. ABN 74 614 366 031 • ACN 614 366 031
  • Hello you 👋
    Do you live in #colac and are you looking for a #career change or to #upskill?
    Well, look no further! We are now taking enrolments in Colac.
    Contact us today to enrol!
    TOID 5553
    This training is delivered with Victorian and Government Funding for eligible participants.
    We encourage individuals with disabilities to apply. genU Training is a division of Karingal St Laurence
    Limited. ABN 74 614 366 031 • ACN 614 366 031
  •  1  1  23 minutes ago
  • What a great illustration to sum up just exactly what chronic illness feels and looks like! 💛 Who else is going to start sharing this around to those who need a little help understanding? ☺️
  • What a great illustration to sum up just exactly what chronic illness feels and looks like! 💛 Who else is going to start sharing this around to those who need a little help understanding? ☺️
  •  3  1  25 minutes ago
  • 🌚✨ᎧᏂ ᎶᏝᎧᏰ ¿ΛI ɹǝɥʇouɐ¿✨🌚 last week the nurse accessed my port and the pump ran the infusions even though the pressure was really high🤷🏻‍♀️ this week mum actually did a heaps good job of accessing my port (yesterday) 😷💉 but because the nurses were getting worried about the pressure issue, they decided to run the infusion at a much lower rate for the first 15 minutes👍🏼 the pressure was super low (almost 0) and everyone was celebrating🥳 but as soon as they put the rate back up to 999ml/hr the pressure went high and it occluded😭 so they decided to de-access me and do a peripheral IV💉 the acting senior nurse talked to the oncology team👩🏻‍⚕️👨🏽‍⚕️and they said we could use a high pressure needle on me but it’s important to know why we have to do that🤔so I have to go to radiology get a port study (imaging with contrast to see if they can find the problem) ASAP (probably later this week)😷💉 I’ll keep getting peripheral IV’s until we sort it out💉I’m a little bit nervous about the port study because I’ve never had contrast, so I don’t know if I’m allergic to it😅but hopefully it will be fine🤞🏼we have some theories about the cause of the issue but really everyone is puzzled about what it could be since Paige the Port is so new😬 but I guess we will find out!🙃 after all that mess one thing really cheered me up yesterday🤗 last Thursday at my Autism Workshop I completed a survey (advising the IT team on a design and title for a new website giving information on Autism)🌈🧠 that entered me into a draw for a $100 movie voucher... and I won!!!🤩🥳 the text came while I was infusing and I couldn’t believe my luck😱 usually small prizes/raffles involve food that I can’t eat so when I heard about this prize, I really wanted it😂😂 so anyone know any good movies coming in the next year?😍 (plz not Cats.. 😂their faces are scary!! also I don’t like horror, I’ve got enough nightmare feul!)👻
  • 🌚✨ᎧᏂ ᎶᏝᎧᏰ ¿ΛI ɹǝɥʇouɐ¿✨🌚 last week the nurse accessed my port and the pump ran the infusions even though the pressure was really high🤷🏻‍♀️ this week mum actually did a heaps good job of accessing my port (yesterday) 😷💉 but because the nurses were getting worried about the pressure issue, they decided to run the infusion at a much lower rate for the first 15 minutes👍🏼 the pressure was super low (almost 0) and everyone was celebrating🥳 but as soon as they put the rate back up to 999ml/hr the pressure went high and it occluded😭 so they decided to de-access me and do a peripheral IV💉 the acting senior nurse talked to the oncology team👩🏻‍⚕️👨🏽‍⚕️and they said we could use a high pressure needle on me but it’s important to know why we have to do that🤔so I have to go to radiology get a port study (imaging with contrast to see if they can find the problem) ASAP (probably later this week)😷💉 I’ll keep getting peripheral IV’s until we sort it out💉I’m a little bit nervous about the port study because I’ve never had contrast, so I don’t know if I’m allergic to it😅but hopefully it will be fine🤞🏼we have some theories about the cause of the issue but really everyone is puzzled about what it could be since Paige the Port is so new😬 but I guess we will find out!🙃 after all that mess one thing really cheered me up yesterday🤗 last Thursday at my Autism Workshop I completed a survey (advising the IT team on a design and title for a new website giving information on Autism)🌈🧠 that entered me into a draw for a $100 movie voucher... and I won!!!🤩🥳 the text came while I was infusing and I couldn’t believe my luck😱 usually small prizes/raffles involve food that I can’t eat so when I heard about this prize, I really wanted it😂😂 so anyone know any good movies coming in the next year?😍 (plz not Cats.. 😂their faces are scary!! also I don’t like horror, I’ve got enough nightmare feul!)👻
  •  14  3  25 minutes ago
  • "Bakit SAD ang b3b3 q?" Naranasan mo na bang maging sad ng walang dahilan? Tinamaan ka na ba ng sad sa di mo inaahasang panahon?

SAD= Sickness. Accident. Disability.

These events will hit us kahit sino ka pa. Wala kang lusot dito, and it needs money para to survive these events.

The question is, sino ang gusto mong magbayad sa bills mo? insurance or family mo? 😢

#Sickness #Accident #Disability #Insurance #Investment #Savings #Protection #Finance #TheFunnyAdvisorPH
  • "Bakit SAD ang b3b3 q?" Naranasan mo na bang maging sad ng walang dahilan? Tinamaan ka na ba ng sad sa di mo inaahasang panahon?

    SAD= Sickness. Accident. Disability.

    These events will hit us kahit sino ka pa. Wala kang lusot dito, and it needs money para to survive these events.

    The question is, sino ang gusto mong magbayad sa bills mo? insurance or family mo? 😢

    #Sickness #Accident #Disability #Insurance #Investment #Savings #Protection #Finance #TheFunnyAdvisorPH
  •  3  0  32 minutes ago
  • Got admitted into the hospital last night for the first time this year with a slight upper respiratory infection as per normal. To most people I would not seem nearly sick enough to be admitted but for someone with SMA colds can easily turn into infections and these infections can turn very serious within days if not treated properly. My pediatrician and nurses and I all have a plan that the moment I’m pretty much unwell I get admitted and get immediately put onto iv antibiotics. Not sure how long I’ll be in could be a couple days, could be a couple weeks! I get physio 3-4 times a day which includes use of my cough assist machine etc.. being in hospital for me is extremely tiring with my weak chest muscles trying to fight infection and continuous coughing but praying that this is just going to be a short stay and I don’t end up any worse!

#sma #spinalmuscularatrophy #smatype1 #smatype2 #smatype3 #wheelchair #disabledlife #wheelchairlife #happy #disability #disabilityawareness #idkwhatimdoing #disabledandcute #disabledandproud #hospital
  • Got admitted into the hospital last night for the first time this year with a slight upper respiratory infection as per normal. To most people I would not seem nearly sick enough to be admitted but for someone with SMA colds can easily turn into infections and these infections can turn very serious within days if not treated properly. My pediatrician and nurses and I all have a plan that the moment I’m pretty much unwell I get admitted and get immediately put onto iv antibiotics. Not sure how long I’ll be in could be a couple days, could be a couple weeks! I get physio 3-4 times a day which includes use of my cough assist machine etc.. being in hospital for me is extremely tiring with my weak chest muscles trying to fight infection and continuous coughing but praying that this is just going to be a short stay and I don’t end up any worse!

    #sma #spinalmuscularatrophy #smatype1 #smatype2 #smatype3 #wheelchair #disabledlife #wheelchairlife #happy #disability #disabilityawareness #idkwhatimdoing #disabledandcute #disabledandproud #hospital
  •  3  0  59 minutes ago
  • Recent fitbit stats.
Im slowly increasing my activity. 
Last week I had a set back due to overdoing it the week before.

Experienced more pain and fatigue  this week but my sleep has improved a little.
Suggesting I totally overdid it.

Im just trying to find a reasonably healthy balance.

Chronic illness is challenging, it fluctuates and no two days are the same, the contrast can be huge.
  • Recent fitbit stats.
    Im slowly increasing my activity.
    Last week I had a set back due to overdoing it the week before.

    Experienced more pain and fatigue this week but my sleep has improved a little.
    Suggesting I totally overdid it.

    Im just trying to find a reasonably healthy balance.

    Chronic illness is challenging, it fluctuates and no two days are the same, the contrast can be huge.
  •  5  1  1 hour ago
  • The inaugural #HollywiththeMD 'Not your inspiration' tshirt is now available internationally through @redbubble!

Luke and I designed the slogan and it's available on #tshirts, #mugs, #journals, #prints, and #stickers. It's black so make sure your background colour is not too dark. 
I'm wearing a Medium basic tshirt. It's quite big and baggy on me, so if you're #crippled and ultra #skinny like me, maybe go for the Small. I've worn it all day; in my wheelchair, in the #car, and most importantly in #bed. It's comfortable, no itchy tags/labels, and the actual print on the shirt is soft too. 
This site makes the tshirts or other items as you order them and ships internationally, so I can send my tshirts all over the world without lifting a finger. 
Every item you buy will have 20% of the profits (I make about $3 - $5 per tshirt) donated to Muscular Dystrophy charities. 
If this is a success we want to make more snarky tees for all sorts of disabilities and chronic illnesses. Plus designs and jokes for those who aren't disabled, but love someone who is (Eg 'My daughter needs a cure, not #prayers'). The link to my online shop is in my bio. If you buy anything, when you get it take a pic and tag me in it! I want to see my message around the world! 
I want to make people feel like they don't have to fake a smile or lie about how shit their disability is. (Obviously if you have any issues or questions, comment or DM me)

#disability #musculardystrophy #voluntaryassisteddying #mentalhealth #depression #wheelchair #chronicillness #HollywiththeMD #hollywarland #cat #cats #fashion
  • The inaugural #HollywiththeMD 'Not your inspiration' tshirt is now available internationally through @redbubble!

    Luke and I designed the slogan and it's available on #tshirts, #mugs, #journals, #prints, and #stickers. It's black so make sure your background colour is not too dark.
    I'm wearing a Medium basic tshirt. It's quite big and baggy on me, so if you're #crippled and ultra #skinny like me, maybe go for the Small. I've worn it all day; in my wheelchair, in the #car, and most importantly in #bed. It's comfortable, no itchy tags/labels, and the actual print on the shirt is soft too.
    This site makes the tshirts or other items as you order them and ships internationally, so I can send my tshirts all over the world without lifting a finger.
    Every item you buy will have 20% of the profits (I make about $3 - $5 per tshirt) donated to Muscular Dystrophy charities.
    If this is a success we want to make more snarky tees for all sorts of disabilities and chronic illnesses. Plus designs and jokes for those who aren't disabled, but love someone who is (Eg 'My daughter needs a cure, not #prayers'). The link to my online shop is in my bio. If you buy anything, when you get it take a pic and tag me in it! I want to see my message around the world!
    I want to make people feel like they don't have to fake a smile or lie about how shit their disability is. (Obviously if you have any issues or questions, comment or DM me)

    #disability #musculardystrophy #voluntaryassisteddying #mentalhealth #depression #wheelchair #chronicillness #HollywiththeMD #hollywarland #cat #cats #fashion
  •  337  10  1 hour ago
  • **PLEASE READ ABOVE**
Ok, I know this is not an art post. But this project is very important to me. It would mean so much if you would participate! If you have any questions, please DM me 😊
  • **PLEASE READ ABOVE**
    Ok, I know this is not an art post. But this project is very important to me. It would mean so much if you would participate! If you have any questions, please DM me 😊
  •  0  1  1 hour ago
  • Today was a hard day. I crashed really hard as I expected and still had to make it out of the house to go to a doctors appointment. I let myself relax on holiday by reading for pleasure and not making an bracelets but coming home I feel the overwhelming stack of bracelets I have to get done before the summer ends just starting at me. I know I always say on here that I know my boundaries and when to rest. I often say I will but then as soon as I’m resting the anxiety disorder goes off and I have to start doing something. I guess in a way the bracelet orders have helped keep my mind busy when my body is breaking down before my eyes. But at some point I need to be able to be without making myself busy. Luckily bracelets can be done in bed and don’t take too much energy in the grand scheme of things but I know I harm my body by working more than I should on days I promised myself I would rest. Having chronic fatigue and anxiety is one hell of a rollercoaster and I am working with my therapist on my tendency to overwork myself to avoid the frightening  effects of my mental illness. I’m okay. But sometimes I’m tired of being responsible for my physical and mental illness’s. I’m blessed to have the most supportive mom in the world. My quality of life would be next to nothing without her. That said, needing her so often takes a tole on my sense of independence and adulthood. I know this stems from internalized ableism but it’s really hard to get away from sometimes. Tomorrow I have an appointment to do a preliminary test for hyper mobility and possible EDS. Not looking forward it but I’m gonna keep going because I know the more answers about my health I can get the more I will be able to take care of it!
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#fiI bromyalgia #fibrofighter #pots #potssyndrome #mecfs #cfsme #potsie #spoonielife #spoonie #chronicillness #chronicpain #chronicillnesswarrior #chronicillnessawareness #chronicfatiguesyndrome #chronicpainawareness #disability #disabilityawareness #mentalhealthawareness #mentalhealth #mentalillness #obsessivecompulsivedisorder #generalizedanxietydisorder #socialanxiety 
#adhd #dermotillomania
  • Today was a hard day. I crashed really hard as I expected and still had to make it out of the house to go to a doctors appointment. I let myself relax on holiday by reading for pleasure and not making an bracelets but coming home I feel the overwhelming stack of bracelets I have to get done before the summer ends just starting at me. I know I always say on here that I know my boundaries and when to rest. I often say I will but then as soon as I’m resting the anxiety disorder goes off and I have to start doing something. I guess in a way the bracelet orders have helped keep my mind busy when my body is breaking down before my eyes. But at some point I need to be able to be without making myself busy. Luckily bracelets can be done in bed and don’t take too much energy in the grand scheme of things but I know I harm my body by working more than I should on days I promised myself I would rest. Having chronic fatigue and anxiety is one hell of a rollercoaster and I am working with my therapist on my tendency to overwork myself to avoid the frightening effects of my mental illness. I’m okay. But sometimes I’m tired of being responsible for my physical and mental illness’s. I’m blessed to have the most supportive mom in the world. My quality of life would be next to nothing without her. That said, needing her so often takes a tole on my sense of independence and adulthood. I know this stems from internalized ableism but it’s really hard to get away from sometimes. Tomorrow I have an appointment to do a preliminary test for hyper mobility and possible EDS. Not looking forward it but I’m gonna keep going because I know the more answers about my health I can get the more I will be able to take care of it!
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    #fiI bromyalgia #fibrofighter #pots #potssyndrome #mecfs #cfsme #potsie #spoonielife #spoonie #chronicillness #chronicpain #chronicillnesswarrior #chronicillnessawareness #chronicfatiguesyndrome #chronicpainawareness #disability #disabilityawareness #mentalhealthawareness #mentalhealth #mentalillness #obsessivecompulsivedisorder #generalizedanxietydisorder #socialanxiety
    #adhd #dermotillomania
  •  22  2  1 hour ago
  • Grey (beeth0ven), a dear member of the #cripplepunk community passed away last year. They were behind the podcast "Not Your Inspiration" and affected many people. I miss them dearly and have only begun to process all of this. It has been a very hard year. .
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[ID: a portrait of a young person with a shaved head who is sitting in bed and holding a microphone that is attached to their laptop. They are wearing a shirt that says "Magnito was right" but it's not really visible. There is an art deco inspired border with lilies and the word "Grey" worked into the design as well as a Star of David in the lower right corner. The drawing is primarily in purple.]
#disabledartist
#disability
  • Grey (beeth0ven), a dear member of the #cripplepunk community passed away last year. They were behind the podcast "Not Your Inspiration" and affected many people. I miss them dearly and have only begun to process all of this. It has been a very hard year. .
    .
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    [ID: a portrait of a young person with a shaved head who is sitting in bed and holding a microphone that is attached to their laptop. They are wearing a shirt that says "Magnito was right" but it's not really visible. There is an art deco inspired border with lilies and the word "Grey" worked into the design as well as a Star of David in the lower right corner. The drawing is primarily in purple.]
    #disabledartist
    #disability
  •  17  1  1 hour ago
  • CareSouth offer Supported Independent Living to people living in the community who need extra assistance in their day to day lives. We have facilities available for people with varying degrees of disability. Contact us today to find out more via our website or on 1300 554 260. #NDIS #disability #supportedliving
  • CareSouth offer Supported Independent Living to people living in the community who need extra assistance in their day to day lives. We have facilities available for people with varying degrees of disability. Contact us today to find out more via our website or on 1300 554 260. #NDIS #disability #supportedliving
  •  2  0  1 hour ago
  •  1  1  1 hour ago
  • Sometimes, moments hit me, and I realize my life is forever changed by chronic illness; I muster a smile. Simultaneously, I feel grateful and like someone punched me in the gut. It’s a strange feeling, though, not an uncommon one, usually sparked by passed memories coming to the forefront of my mind. I’m struck that I once was different, but I’m here now.
  • Sometimes, moments hit me, and I realize my life is forever changed by chronic illness; I muster a smile. Simultaneously, I feel grateful and like someone punched me in the gut. It’s a strange feeling, though, not an uncommon one, usually sparked by passed memories coming to the forefront of my mind. I’m struck that I once was different, but I’m here now.
  •  41  11  1 hour ago
  •  7  1  1 hour ago
  • #Blessed to have awesome clients! 🙏
  • #Blessed to have awesome clients! 🙏
  •  12  1  1 hour ago
  • A friend asked me to post this!
{ID: A chart that is labelled “just use [blank] straws!” The top row of the chart has columns labeled allergy risk, choking hazard, injury risk, not positionable, not hot liquid safe, dissolve with long use, hard to sanitize, and high cost. The left side has a list of left straws, and x’s for what each straw matches. Metal, paper, silicone, acrylic, pasta/rice, bamboo, and biodegradable straws all have an allergy risk. Paper, pasta/rice, and biodegradable straws have a choking hazard. Metal, glass, acrylic, pasta/rice, and bamboo straws have an injury risk. Metal, paper, glass, silicone,acrylic, pasta/rice and bamboo are not positionable. Not hot liquid safe straws are metal, paper, pasta/rice, acrylic, and biodegradable straws. Straws that dissolve with long use arepaper, pasta/rice, and biodegradable straws. Metal, glass, silicone, acrylic straws are hard to sanitize. High cost straws are metal, glass, silicone, acrylic, and bamboo straws. The only straw that has no x’s are single use straws. Below is text that reads “many disabled individuals require straws for food, meds, and to be social with friends. We can all reduce plastic use, but banning items many depend on harms a very vulnerable population. Pressure companies to make safe alternatives available to all and reduce waste in larger ways. Hurt turtles are devastating, so are children and adults aspirating liquid into their lungs.”}
☄Seven
♿Tags♿
#Activism #Feminism #ADHD #Disability #Ableism #MentalHealth #DownWithAbleism #Deafness #HumanRights #HearingLoss #SafePlace #BlindIsBeautiful #EveryoneIsBeautiful #Support #Positivity #Autism #Chronic #Spoonie #DisabledAndProud #HardOfHearing #DisabledAndCute #ImageDescription #DisabilityActivism #DisabilityAwareness #Awareness
  • A friend asked me to post this!
    {ID: A chart that is labelled “just use [blank] straws!” The top row of the chart has columns labeled allergy risk, choking hazard, injury risk, not positionable, not hot liquid safe, dissolve with long use, hard to sanitize, and high cost. The left side has a list of left straws, and x’s for what each straw matches. Metal, paper, silicone, acrylic, pasta/rice, bamboo, and biodegradable straws all have an allergy risk. Paper, pasta/rice, and biodegradable straws have a choking hazard. Metal, glass, acrylic, pasta/rice, and bamboo straws have an injury risk. Metal, paper, glass, silicone,acrylic, pasta/rice and bamboo are not positionable. Not hot liquid safe straws are metal, paper, pasta/rice, acrylic, and biodegradable straws. Straws that dissolve with long use arepaper, pasta/rice, and biodegradable straws. Metal, glass, silicone, acrylic straws are hard to sanitize. High cost straws are metal, glass, silicone, acrylic, and bamboo straws. The only straw that has no x’s are single use straws. Below is text that reads “many disabled individuals require straws for food, meds, and to be social with friends. We can all reduce plastic use, but banning items many depend on harms a very vulnerable population. Pressure companies to make safe alternatives available to all and reduce waste in larger ways. Hurt turtles are devastating, so are children and adults aspirating liquid into their lungs.”}
    ☄Seven
    ♿Tags♿
    #Activism #Feminism #ADHD #Disability #Ableism #MentalHealth #DownWithAbleism #Deafness #HumanRights #HearingLoss #SafePlace #BlindIsBeautiful #EveryoneIsBeautiful #Support #Positivity #Autism #Chronic #Spoonie #DisabledAndProud #HardOfHearing #DisabledAndCute #ImageDescription #DisabilityActivism #DisabilityAwareness #Awareness
  •  88  9  1 hour ago
  • Y’all. I cannot even begin to explain to you how much the responses to my #WhenICallMyselfDisabled post. Your comments and messages and emails made me laugh, cry, and, most importantly, realize how incredibly loved I am. This has been a rollercoaster of a few years, but having such an amazing support system makes it so worth the bad days. I am SO happy to know that not only are people out there reading my posts, but that my words and experiences are actually helping people. That is all I could ever hope for on this platform. I want to be the person I needed when I was first diagnosed, when the first doctor told me I’d end up in a chair eventually, and when that day finally came. I have been so blessed with my support system, but I am well aware that not everyone is so lucky. So if you don’t have the support system I do around you, message me. Questions about weird new symptoms? Comment. Just wanna say hi and ask me things? Hit up that DM! This platform is ours. Ours to use to inform, to educate, to advocate, to break down walls, and most importantly, to spread a little love. So thank you all again. My little cripple heart has been smiling like a school girl all week long. .
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#eds #ehlersdanlos #ehlersdanlossyndrome #heds #disabledaf #disability #disabilityadvocate #disabilityawareness #disabilityadvocacy #hypermobilitysyndrome #hypermobility #spoonie #chronicillness #chronicallyill
  • Y’all. I cannot even begin to explain to you how much the responses to my #WhenICallMyselfDisabled post. Your comments and messages and emails made me laugh, cry, and, most importantly, realize how incredibly loved I am. This has been a rollercoaster of a few years, but having such an amazing support system makes it so worth the bad days. I am SO happy to know that not only are people out there reading my posts, but that my words and experiences are actually helping people. That is all I could ever hope for on this platform. I want to be the person I needed when I was first diagnosed, when the first doctor told me I’d end up in a chair eventually, and when that day finally came. I have been so blessed with my support system, but I am well aware that not everyone is so lucky. So if you don’t have the support system I do around you, message me. Questions about weird new symptoms? Comment. Just wanna say hi and ask me things? Hit up that DM! This platform is ours. Ours to use to inform, to educate, to advocate, to break down walls, and most importantly, to spread a little love. So thank you all again. My little cripple heart has been smiling like a school girl all week long. .
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    #eds #ehlersdanlos #ehlersdanlossyndrome #heds #disabledaf #disability #disabilityadvocate #disabilityawareness #disabilityadvocacy #hypermobilitysyndrome #hypermobility #spoonie #chronicillness #chronicallyill
  •  29  0  1 hour ago
  • Such an exciting day today!! @carhill765 picked up her new F5 power wheelchair!! This chair is able to stand, reach, lay flat, and adjust her feet and legs!! She has had her old chair for 6 years and it served its purpose well!! We are so blessed to have amazing Dr’s and therapists at @gillettechildrens  They helped us through this journey and made sure Caroline had everything she needed to be an independent young adult!! Watch out she is ready to roll!! #permobil #powerchair #sugarskull #f5 #disability #roll ❤️❤️
  • Such an exciting day today!! @carhill765 picked up her new F5 power wheelchair!! This chair is able to stand, reach, lay flat, and adjust her feet and legs!! She has had her old chair for 6 years and it served its purpose well!! We are so blessed to have amazing Dr’s and therapists at @gillettechildrens They helped us through this journey and made sure Caroline had everything she needed to be an independent young adult!! Watch out she is ready to roll!! #permobil #powerchair #sugarskull #f5 #disability #roll ❤️❤️
  •  6  1  1 hour ago
  • Romi Syofpa Ismael, a dentist from West Sumatra, had her dream crushed when her disability led the South Solok administration to remove her name from the civil servant candidate list.

Ami, as the dentist is affectionately called, initially passed a series of tests in the 2018 as part of the civil servant candidate selection. However, she could not fulfill all the requirements of the physical examination due to her weak lower legs, which she had suffered from for almost three years. (JP/Syofiardi Bachyul Jb)

Head to our Instagram Story to read her full story.

#dentist #disability #westsumatra #jakpost #thejakartapost #SyofiardiBachyulJb
  • Romi Syofpa Ismael, a dentist from West Sumatra, had her dream crushed when her disability led the South Solok administration to remove her name from the civil servant candidate list.

    Ami, as the dentist is affectionately called, initially passed a series of tests in the 2018 as part of the civil servant candidate selection. However, she could not fulfill all the requirements of the physical examination due to her weak lower legs, which she had suffered from for almost three years. (JP/Syofiardi Bachyul Jb)

    Head to our Instagram Story to read her full story.

    #dentist #disability #westsumatra #jakpost #thejakartapost #SyofiardiBachyulJb
  •  87  1  1 hour ago
  • After two years, we finally saw our little movie and it is absolutely magical. We can not wait for READY TO RIDE to become your new favorite thing and change the movie musical world! 🙌🏻 As it turns out, strict film festival rules sadly may prevent this movie to come out this year, but we promise we will have a update ASAP and have the earliest release we can get! All that’s guaranteed is that you will defientely see this next year. And stay tuned for something awesome tomorrow! #readytoride #readytoridemovie #thehomecomingmovie #zenomountainfarm #disability
  • After two years, we finally saw our little movie and it is absolutely magical. We can not wait for READY TO RIDE to become your new favorite thing and change the movie musical world! 🙌🏻 As it turns out, strict film festival rules sadly may prevent this movie to come out this year, but we promise we will have a update ASAP and have the earliest release we can get! All that’s guaranteed is that you will defientely see this next year. And stay tuned for something awesome tomorrow! #readytoride #readytoridemovie #thehomecomingmovie #zenomountainfarm #disability
  •  12  0  1 hour ago

Top #disability Posts

  • "If I told you my story, you would hear Hope that wouldn't let go. And if I told you my story, you would hear Love that never gave up. And if I told you my story, you would hear Life, but it wasn't mine..."
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One year ago this week I brought @wildflowers.in.her.hair to life.
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Gently changing as the pages turn, I'm a little older, a bit wiser, maybe braver, slightly weatherworn, physically weaker, but stronger where it counts.
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This time last year, I'd never spent more than a week hospitalized, the hardest days had not yet come, and things that seemed right around the corner still haven't happened. I didn't have this community, these brand new and oh so special friends. 💓
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After all this growth and transition, what has stayed the same?
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Hi! I'm Faith Anne, Wildflower, or Crutchie, and this is my story. Through my my tears, my anguish, and my jubilation, I hope you're inspired. I hope you find endless hope through my pain, and I hope you find deep joy through my wildflowers. 🌻
•••
"This is my story, this is my song. Praising my Savior all the day long."
  • "If I told you my story, you would hear Hope that wouldn't let go. And if I told you my story, you would hear Love that never gave up. And if I told you my story, you would hear Life, but it wasn't mine..."
    •••
    One year ago this week I brought @wildflowers.in.her.hair to life.
    •••
    Gently changing as the pages turn, I'm a little older, a bit wiser, maybe braver, slightly weatherworn, physically weaker, but stronger where it counts.
    •••
    This time last year, I'd never spent more than a week hospitalized, the hardest days had not yet come, and things that seemed right around the corner still haven't happened. I didn't have this community, these brand new and oh so special friends. 💓
    •••
    After all this growth and transition, what has stayed the same?
    •••
    Hi! I'm Faith Anne, Wildflower, or Crutchie, and this is my story. Through my my tears, my anguish, and my jubilation, I hope you're inspired. I hope you find endless hope through my pain, and I hope you find deep joy through my wildflowers. 🌻
    •••
    "This is my story, this is my song. Praising my Savior all the day long."
  •  457  22  7 hours ago
  • You'll get there! ♿❤️
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[image description: a tweet of mine which reads: I don't know which disabled folks need to hear this right now but cut yourself some slack. The world is built for abled folks, meaning we have to work twice as hard. Allow yourself to realise that. Allow yourself to rest. You'll get there. ❤️♿]
  • You'll get there! ♿❤️
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    .
    [image description: a tweet of mine which reads: I don't know which disabled folks need to hear this right now but cut yourself some slack. The world is built for abled folks, meaning we have to work twice as hard. Allow yourself to realise that. Allow yourself to rest. You'll get there. ❤️♿]
  •  442  29  7 hours ago
  • Instagram can seem perfect, but reality is not. Let me tell you the truth behind this picture!

For those of who who follow my adventures, you know that I travel ALL the time! One thing I don’t talk about nearly enough is how crazy hard travel is on my body. Sometimes I will have days where I break down from exhaustion, where I am in so much pain I can’t move or where I simply hit a mental wall and have epic meltdowns. Unfortunately, the day I got the chance to see something I’ve been dreaming of seeing my whole life - the Eiffel Tower - landed on one of those “too-much-pain-can’t-move” days. I literally had to drag myself out of the hotel to take this picture and immediately went back to the hotel from being in so much pain. I didn’t really get to see anything in Paris other than a blurry-eyed snapshot of the Eiffel Tower.

I definitely DON’T tell you this so you will feel bad for me, but rather so that you see the reality life. Even though I fight tooth and nail to not let my injury stop me, I frequently have days where I feel like I’m not strong enough, not worthy enough, or not brave enough to keep going. I know SO many of you feel those same emotions every day and I want you to know that you’re not alone! The ability to experience bold adventures doesn’t mean that you have overcome all your problems and self-doubts. The opposite actually, because it is exactly those emotions that can fuel you to keep going and to be a SURVIVOR. 
It is the journey that is beautiful, even though the end result might not always be what you expected 💕

As for Paris, I’m sure that I will go back and experience it one day. But for now it is back to my beloved USA ✈️ Thank you all for your support and comments on this European adventure! •
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• #travel #eiffeltower #france #travelblog #inspiration #wheelchair #disability #fashion #beauty #missusa #pageant #europe
  • Instagram can seem perfect, but reality is not. Let me tell you the truth behind this picture!

    For those of who who follow my adventures, you know that I travel ALL the time! One thing I don’t talk about nearly enough is how crazy hard travel is on my body. Sometimes I will have days where I break down from exhaustion, where I am in so much pain I can’t move or where I simply hit a mental wall and have epic meltdowns. Unfortunately, the day I got the chance to see something I’ve been dreaming of seeing my whole life - the Eiffel Tower - landed on one of those “too-much-pain-can’t-move” days. I literally had to drag myself out of the hotel to take this picture and immediately went back to the hotel from being in so much pain. I didn’t really get to see anything in Paris other than a blurry-eyed snapshot of the Eiffel Tower.

    I definitely DON’T tell you this so you will feel bad for me, but rather so that you see the reality life. Even though I fight tooth and nail to not let my injury stop me, I frequently have days where I feel like I’m not strong enough, not worthy enough, or not brave enough to keep going. I know SO many of you feel those same emotions every day and I want you to know that you’re not alone! The ability to experience bold adventures doesn’t mean that you have overcome all your problems and self-doubts. The opposite actually, because it is exactly those emotions that can fuel you to keep going and to be a SURVIVOR.
    It is the journey that is beautiful, even though the end result might not always be what you expected 💕

    As for Paris, I’m sure that I will go back and experience it one day. But for now it is back to my beloved USA ✈️ Thank you all for your support and comments on this European adventure! •





    #travel #eiffeltower #france #travelblog #inspiration #wheelchair #disability #fashion #beauty #missusa #pageant #europe
  •  769  35  12 hours ago
  • Husband walks in from work "hey Rockstar!"😂 #ledzeppelin
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Yes that is a tattoo! I have 3 tattoos and want another
  • Husband walks in from work "hey Rockstar!"😂 #ledzeppelin
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    Yes that is a tattoo! I have 3 tattoos and want another
  •  677  29  8 hours ago
  • So every now and then I like to post about my life story since I gain so many followers and here it goes!
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For all of you that don’t know, during my birth my birth doctor used forceps which broke my neck and led me to a C1-C2 Spinal Cord Injury. Now that means I’m in a wheelchair and breathing machine.
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Ever since that they all doctors and nurses would tell my parents nothing but the worst. Like I would be a vegetable. Not being able to do anything.
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Well I did everything they said I wouldn’t. I proved everyone wrong and continue to do so!
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I met the love of my life and got married just 6 weeks ago and it was not only the best day of my life but my husbands as well!
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So never ever let anyone tell you different!
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I know you all probably miss these wedding pictures! So decided to post one this morning
  • So every now and then I like to post about my life story since I gain so many followers and here it goes!
    -
    For all of you that don’t know, during my birth my birth doctor used forceps which broke my neck and led me to a C1-C2 Spinal Cord Injury. Now that means I’m in a wheelchair and breathing machine.
    -
    Ever since that they all doctors and nurses would tell my parents nothing but the worst. Like I would be a vegetable. Not being able to do anything.
    -
    Well I did everything they said I wouldn’t. I proved everyone wrong and continue to do so!
    -
    I met the love of my life and got married just 6 weeks ago and it was not only the best day of my life but my husbands as well!
    -
    So never ever let anyone tell you different!
    -
    I know you all probably miss these wedding pictures! So decided to post one this morning
  •  816  19  14 hours ago
  • I haven't posted anything today so here is a picture of me and my red crutches from a few weeks ago. I don't use them as much as my wheelchair but I love them nonetheless!
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[image description: a picture of me, a 5'8 man standing in front is a hedge of yellow flowers on cement ground on a sunny day. I'm using bright red crutches. I have short black hair brushed to the side on top and a short full face beard. I'm wearing a blue checked shirt and dark jeans with red air Jordans. I am smiling and look very happy]
  • I haven't posted anything today so here is a picture of me and my red crutches from a few weeks ago. I don't use them as much as my wheelchair but I love them nonetheless!
    .
    .
    [image description: a picture of me, a 5'8 man standing in front is a hedge of yellow flowers on cement ground on a sunny day. I'm using bright red crutches. I have short black hair brushed to the side on top and a short full face beard. I'm wearing a blue checked shirt and dark jeans with red air Jordans. I am smiling and look very happy]
  •  752  26  21 July, 2019