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  • DUCHENNE A-Z by Duchenne Awareness UK
M - MDX mouse

One of the most useful tools in DMD research is the dystrophin-deficient mdx mouse (acronym for "X-chromosome-linked muscular dystrophy"). It was discovered in the early 1980s in a colony of mice due to elevated serum creatine kinase (CK) and histological evidence of myopathy - a disease of muscle tissue. 
This animal model possesses a mutation (change) in the gene that codes for the dystrophin protein, and while it does not nearly exhibit the full range of symptoms that human patients do, it has shone a great deal of light on the molecular mechanisms behind this unforgiving disease. 
The mice are good biochemical and muscle physiology models of DMD but, unlike man, they do not show any obvious clinical signs of the condition. Indeed, most people cannot tell the difference between mdx and wild-type mice when looking at a cage of mice. The comparatively mild phenotype of the mdx mouse is beneficial from a welfare perspective, as the animal can provide important genetic information without suffering as humans do during their time in the laboratory.

While the mdx mouse is the most commonly used model, several refinements have been made to create other rodent models that are more closely representative of the human experience of DMD. By removing certain genes that were suspected to produce proteins capable of compensating for the lack of functional dystrophin, mouse models have been obtained that display the characteristic symptoms of DMD such as cardiomyopathy and reduced lifespan. Some examples of alternative models to the standard mdx mouse are mdx/Utrn-/-, mdx/Dtna-/-, mdx/α7-/- and mdx4cv/mTR-/-, to name but a few.
  • DUCHENNE A-Z by Duchenne Awareness UK
    M - MDX mouse

    One of the most useful tools in DMD research is the dystrophin-deficient mdx mouse (acronym for "X-chromosome-linked muscular dystrophy"). It was discovered in the early 1980s in a colony of mice due to elevated serum creatine kinase (CK) and histological evidence of myopathy - a disease of muscle tissue.
    This animal model possesses a mutation (change) in the gene that codes for the dystrophin protein, and while it does not nearly exhibit the full range of symptoms that human patients do, it has shone a great deal of light on the molecular mechanisms behind this unforgiving disease.
    The mice are good biochemical and muscle physiology models of DMD but, unlike man, they do not show any obvious clinical signs of the condition. Indeed, most people cannot tell the difference between mdx and wild-type mice when looking at a cage of mice. The comparatively mild phenotype of the mdx mouse is beneficial from a welfare perspective, as the animal can provide important genetic information without suffering as humans do during their time in the laboratory.

    While the mdx mouse is the most commonly used model, several refinements have been made to create other rodent models that are more closely representative of the human experience of DMD. By removing certain genes that were suspected to produce proteins capable of compensating for the lack of functional dystrophin, mouse models have been obtained that display the characteristic symptoms of DMD such as cardiomyopathy and reduced lifespan. Some examples of alternative models to the standard mdx mouse are mdx/Utrn-/-, mdx/Dtna-/-, mdx/α7-/- and mdx4cv/mTR-/-, to name but a few.
  •  6  1  50 minutes ago
  • Sometimes it’s the simple pleasures that make us smile. Never underestimate the joy of a balloon! 🎈💗😊 #alzheimers #dementia #carer
  • Sometimes it’s the simple pleasures that make us smile. Never underestimate the joy of a balloon! 🎈💗😊 #alzheimers #dementia #carer
  •  4  0  1 hour ago
  • On the 3rd Thursday of every month, we run our Carers' Group, where we invite carers to join us for a chat and to share their experiences over a cup of tea and help them as much as we can.

And with the beautiful weather we've been enjoying recently, we decided to take this month's meeting out into the park with a nature walk. 
We also had a quiz all about the history of the Hospice and discussions on manual handling, nutrition, first aid and various topics and challenges that our group raised as being things they would like to discuss or receive support with.

If you know someone who is caring for a loved one or would benefit from being a part of our Carers' Group, please do email esther.olivier@marystevenshospice.co.uk for information.

#care #carer #carers #carersgroup #support #supportgroup #network #supportnetwork #help #love #community #walk #quiz #hospice #stourbridge #blackcountry #family #friends #lovedones
  • On the 3rd Thursday of every month, we run our Carers' Group, where we invite carers to join us for a chat and to share their experiences over a cup of tea and help them as much as we can.

    And with the beautiful weather we've been enjoying recently, we decided to take this month's meeting out into the park with a nature walk.
    We also had a quiz all about the history of the Hospice and discussions on manual handling, nutrition, first aid and various topics and challenges that our group raised as being things they would like to discuss or receive support with.

    If you know someone who is caring for a loved one or would benefit from being a part of our Carers' Group, please do email esther.olivier@marystevenshospice.co.uk for information.

    #care #carer #carers #carersgroup #support #supportgroup #network #supportnetwork #help #love #community #walk #quiz #hospice #stourbridge #blackcountry #family #friends #lovedones
  •  15  0  3 hours ago
  • Unfortunately this is becoming a norm in our industry but with the right training you can feel more confident in yourself that you’re doing a fantastic job.

All nurses, carers, HCAs, doctors and everyone else working in the healthcare industry, you are kings and queens 👸🏼🤴🏻 Carry on doing what you’re doing! 
#training #nurse #carer #doctor #eastbourne #hastings #bexhill #firstaid #movingandhandling
  • Unfortunately this is becoming a norm in our industry but with the right training you can feel more confident in yourself that you’re doing a fantastic job.

    All nurses, carers, HCAs, doctors and everyone else working in the healthcare industry, you are kings and queens 👸🏼🤴🏻 Carry on doing what you’re doing!
    #training #nurse #carer #doctor #eastbourne #hastings #bexhill #firstaid #movingandhandling
  •  4  0  4 hours ago
  • Posted @withrepost • @thehotflushes With me struggling with #menopause whilst being a #family #carer, I read anything to help my #brain fog and reduce any #fat being stored due to the hours I sit around being inactive so I try to find anything that supports my future #brain #function . 
Enter #Dr Mary Newport, who at the same time as being a carer for a loved one with #Alzheimers used her expertise in neo-natal care to #research how she could help reverse her #husbands condition . 20 years ago I used the #Ketone #diet to improve #fibromyalgia and lost body fat, (alongside strength training), and so her work appealed to me. With #Alzheimers in my close family its clear I need to look at doing all I can to protect my #cognitive function and reduce Alzheimer’s risk.

Her advice is clear, accessible and informative and best of all answered a simple question my brain has never been able to get round, ‘“what is a ketone” In her own words Dr Newton outlines the key in #ketones. Information can be found on https://coconutketones.com
  • Posted @withrepost@thehotflushes With me struggling with #menopause whilst being a #family #carer, I read anything to help my #brain fog and reduce any #fat being stored due to the hours I sit around being inactive so I try to find anything that supports my future #brain #function .
    Enter #Dr Mary Newport, who at the same time as being a carer for a loved one with #Alzheimers used her expertise in neo-natal care to #research how she could help reverse her #husbands condition . 20 years ago I used the #Ketone #diet to improve #fibromyalgia and lost body fat, (alongside strength training), and so her work appealed to me. With #Alzheimers in my close family its clear I need to look at doing all I can to protect my #cognitive function and reduce Alzheimer’s risk.

    Her advice is clear, accessible and informative and best of all answered a simple question my brain has never been able to get round, ‘“what is a ketone” In her own words Dr Newton outlines the key in #ketones. Information can be found on https://coconutketones.com
  •  3  1  4 hours ago
  • Posted @withrepost • @thehotflushes Super Ageing - Some people feel the #superaging pressure to be uber glamorous, mega quaffed, super slim, yoga akimbo barmy bunjy jumping . 
This is my idea of a calm, cool approach to easing into your mid 90’s. Memory might not always be on hand, but his every day is wonderful and he is loved for showing us how it’s done 
#dad #chill #alzheimers #caring #carer #relax
  • Posted @withrepost@thehotflushes Super Ageing - Some people feel the #superaging pressure to be uber glamorous, mega quaffed, super slim, yoga akimbo barmy bunjy jumping .
    This is my idea of a calm, cool approach to easing into your mid 90’s. Memory might not always be on hand, but his every day is wonderful and he is loved for showing us how it’s done
    #dad #chill #alzheimers #caring #carer #relax
  •  1  0  5 hours ago
  • We’re looking for reliable, flexible Health Care assistants in Kilkenny for homecare. Call our recruitment team for more information.
  • We’re looking for reliable, flexible Health Care assistants in Kilkenny for homecare. Call our recruitment team for more information.
  •  0  1  5 hours ago
  • Looking for a rewarding, flexible job in West Waterford?  We are hiring...
  • Looking for a rewarding, flexible job in West Waterford? We are hiring...
  •  2  1  5 hours ago
  • APPRECIATION POST! 
This is my partner, Dan. We have been together 2 and a half years. He is my registered carer. He is the most important person in my life. He makes me a better person. I love him entirely. 
He always puts me first. He prioritises me. He provides for me. He looks after me when I’m sick (which is a lot). He comforts me when I’m sad. He makes me feel safe when I’m scared. He lets me put silly things on his head. He gives me a goodnight cuddle every night before bed. He gives me cute nicknames and sings silly songs about me. He plans our wedding.

Dan lost his job seven months ago. He’s been to twenty interviews with no luck. The only reason we are able to stay in our own home is that a friend of the family is our landlord. Money is extremely tight- even when I start getting paid for work, I’ll get paid less than £400 per month due to only working 12 hours per week. He needs a job desperately. Despite all the stress, he keeps going. He gets rejected and he perks back up.

Our relationship is as stronger than it’s ever been. Our communication is better than its ever been. Despite extreme stress he still looks after me.

I want to spend the rest of my life with this man. I want nothing more than for us to be financially stable and at least *almost* worry free. We are already happy together, I just wish we could be happier in life. .
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#carer #stress #boyfriendappreciation #boyfriendappreciationpost #chronicillness #chronicpain #chronicfatigue #chronicstress #financialstress #ehlersdanlossyndrome
  • APPRECIATION POST!
    This is my partner, Dan. We have been together 2 and a half years. He is my registered carer. He is the most important person in my life. He makes me a better person. I love him entirely.
    He always puts me first. He prioritises me. He provides for me. He looks after me when I’m sick (which is a lot). He comforts me when I’m sad. He makes me feel safe when I’m scared. He lets me put silly things on his head. He gives me a goodnight cuddle every night before bed. He gives me cute nicknames and sings silly songs about me. He plans our wedding.

    Dan lost his job seven months ago. He’s been to twenty interviews with no luck. The only reason we are able to stay in our own home is that a friend of the family is our landlord. Money is extremely tight- even when I start getting paid for work, I’ll get paid less than £400 per month due to only working 12 hours per week. He needs a job desperately. Despite all the stress, he keeps going. He gets rejected and he perks back up.

    Our relationship is as stronger than it’s ever been. Our communication is better than its ever been. Despite extreme stress he still looks after me.

    I want to spend the rest of my life with this man. I want nothing more than for us to be financially stable and at least *almost* worry free. We are already happy together, I just wish we could be happier in life. .
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    #carer #stress #boyfriendappreciation #boyfriendappreciationpost #chronicillness #chronicpain #chronicfatigue #chronicstress #financialstress #ehlersdanlossyndrome
  •  16  1  6 hours ago
  • For any orders received this month for a Harvest Healthcare profiling bed, our sales team are giving away a Canterbury Overbed Table completely free of charge with each order!

This offer is valid for all purchase orders up to and including 31st July 2019 so please take advantage of this while stocks last! 
Please visit our website at www.ardencaresupplies.co.uk for further details. 
#offer #bed #foc #monday #carer #hospital #nursinghome #nursingstaff #nursing #toogoodtomiss #july
  • For any orders received this month for a Harvest Healthcare profiling bed, our sales team are giving away a Canterbury Overbed Table completely free of charge with each order!

    This offer is valid for all purchase orders up to and including 31st July 2019 so please take advantage of this while stocks last!
    Please visit our website at www.ardencaresupplies.co.uk for further details.
    #offer #bed #foc #monday #carer #hospital #nursinghome #nursingstaff #nursing #toogoodtomiss #july
  •  2  0  8 hours ago
  • At Dignity, helping give others some independence is at the core of why we do what we do! 💙
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We believe our self confidence all begins with the ability to perform our most basic personal hygiene and bathroom tasks with confidence and independence. Our confidence and independence relating to performing these tasks impacts our confidence levels across every other aspect of our lives. We, therefore, focus all our energy on providing products and services to makes independent personal care and bathroom use possible for a range of health conditions that can affect our ability.
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If we have helped give you or someone you care for some independence then let us know below 💙
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#independent #carer #disability #specialneedsparenting #specialneeds #autism #cerebralpalsy #cerebralpalsykids #disability #paraplegic #wheelchairgirl
  • At Dignity, helping give others some independence is at the core of why we do what we do! 💙
    .
    We believe our self confidence all begins with the ability to perform our most basic personal hygiene and bathroom tasks with confidence and independence. Our confidence and independence relating to performing these tasks impacts our confidence levels across every other aspect of our lives. We, therefore, focus all our energy on providing products and services to makes independent personal care and bathroom use possible for a range of health conditions that can affect our ability.
    .
    If we have helped give you or someone you care for some independence then let us know below 💙
    .
    .
    .
    #independent #carer #disability #specialneedsparenting #specialneeds #autism #cerebralpalsy #cerebralpalsykids #disability #paraplegic #wheelchairgirl
  •  2  0  10 hours ago
  • Here are some Tips from #carers of people with #dementia about coping with warmer weather .

Do you have other tips you want to share ? We would love to hear from you! 😊

Bunpoots says, 'Last year l used to keep a two-litre bottle, either an old milk bottle or a pop bottle, three-quarters full of water in the freezer and pop it in front of a fan to cool my dad down on hot days. He was happy with this. Instant air conditioning.' Jbob says, 'My dad has had swollen legs and feet. He likes it when I spray peppermint foot spray on his legs and feet, as it helps to cool them down. He really feels the coldness of the peppermint though!' nitram says, 'Ensure that the person remains hydrated, keep offering fluids especially plain water.' NanLorac says, 'I keep sparkling water in the fridge. I find making up drinks for my husband using the fizzy water rather than tap water means they get drank quicker and keep him hydrated.' Chemmy says, 'Keep the curtains closed and windows shut during the day in hot, south facing rooms. Once the heat of the day has passed, open both to let the warm air out and fresh cooler air in. If you think of the houses in Spain and elsewhere on the Med, with their wooden shutters closed all day, it makes sense.' 'My mum struggles to understand that the radiators are not on because the temperature outside meets the temperature on the thermostat, and thinks the boiler is not working. Any tips on that one would be welcome!' Shedrech says, 'I make sure Dad has clothes made from natural fibres and that they are loose fitting (well, apart from the trouser waist). A hat or cap when outside to cover his bald patch and provide shade to his eyes. 'He's not safe in sandals though as he can trip, so I try to have him sit for a while with his feet up and no socks or shoes to give his feet a rest and some air. 
___________________________________________________________
#heatwaveuk #wellness #dementiafriends #dementiaawareness 
#mum #dad #liveincare #dementiacare #dementiacarers #homecare #alzheimers #elderly #carer #wellness #wellbeing #lifestyle #health #socialcare #healthcare #elderlypeople #heatwave
  • Here are some Tips from #carers of people with #dementia about coping with warmer weather .

    Do you have other tips you want to share ? We would love to hear from you! 😊

    Bunpoots says, 'Last year l used to keep a two-litre bottle, either an old milk bottle or a pop bottle, three-quarters full of water in the freezer and pop it in front of a fan to cool my dad down on hot days. He was happy with this. Instant air conditioning.' Jbob says, 'My dad has had swollen legs and feet. He likes it when I spray peppermint foot spray on his legs and feet, as it helps to cool them down. He really feels the coldness of the peppermint though!' nitram says, 'Ensure that the person remains hydrated, keep offering fluids especially plain water.' NanLorac says, 'I keep sparkling water in the fridge. I find making up drinks for my husband using the fizzy water rather than tap water means they get drank quicker and keep him hydrated.' Chemmy says, 'Keep the curtains closed and windows shut during the day in hot, south facing rooms. Once the heat of the day has passed, open both to let the warm air out and fresh cooler air in. If you think of the houses in Spain and elsewhere on the Med, with their wooden shutters closed all day, it makes sense.' 'My mum struggles to understand that the radiators are not on because the temperature outside meets the temperature on the thermostat, and thinks the boiler is not working. Any tips on that one would be welcome!' Shedrech says, 'I make sure Dad has clothes made from natural fibres and that they are loose fitting (well, apart from the trouser waist). A hat or cap when outside to cover his bald patch and provide shade to his eyes. 'He's not safe in sandals though as he can trip, so I try to have him sit for a while with his feet up and no socks or shoes to give his feet a rest and some air.
    ___________________________________________________________
    #heatwaveuk #wellness #dementiafriends #dementiaawareness
    #mum #dad #liveincare #dementiacare #dementiacarers #homecare #alzheimers #elderly #carer #wellness #wellbeing #lifestyle #health #socialcare #healthcare #elderlypeople #heatwave
  •  5  0  10 hours ago
  • 🔹MEET THE TEAM!🔷 ⠀
Our Training Manager, Tracy, first joined Kardinal in 2007 but then left to have a family. She rejoined as the Care Service Supervisor and was promoted to the Training Manager in 2017. Tracy has been in the care industry for over 20 years working in different areas and in different roles. Thank you Tracy for all your hard work! 💙👍
  • 🔹MEET THE TEAM!🔷 ⠀
    Our Training Manager, Tracy, first joined Kardinal in 2007 but then left to have a family. She rejoined as the Care Service Supervisor and was promoted to the Training Manager in 2017. Tracy has been in the care industry for over 20 years working in different areas and in different roles. Thank you Tracy for all your hard work! 💙👍
  •  8  1  11 hours ago
  • Did you know that oil pulling can help support mouth and gum health.
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For added benefit, why not try adding any of the following essential oils:
🌼clove 🌼onguard 🌼peppermint 🌼spearmint
  • Did you know that oil pulling can help support mouth and gum health.
    .
    .
    For added benefit, why not try adding any of the following essential oils:
    🌼clove 🌼onguard 🌼peppermint 🌼spearmint
  •  13  1  11 hours ago
  • ⚫ "Working is a big part of my identity". Episode 3 of our podcast for the award-winning Parkinson's Life magazine focuses on Parkinson's and work. Click the link in bio to find out more.
  • ⚫ "Working is a big part of my identity". Episode 3 of our podcast for the award-winning Parkinson's Life magazine focuses on Parkinson's and work. Click the link in bio to find out more.
  •  17  2  11 hours ago
  • People with dementia may often experience problems with going to the toilet. Both urinary incontinence and bowel incontinence can be difficult to deal with. It can also be very upsetting for the person you care for and for you.⠀
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Sometimes the person with dementia may simply forget they need the toilet or where the toilet is. Although it may be hard, it's important to be understanding about toilet problems. Try to retain a sense of humour, if appropriate, and remember it's not the person's fault.⠀
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You may also want to put a sign on the toilet door – pictures and words work well. Keep the toilet door open and keep a light on at night, or consider sensor lights. Look for signs that the person may need the toilet, such as fidgeting or standing up or down. Try to keep the person active – a daily walk helps with regular bowel movements, also try to make going to the toilet part of a regular daily routine⠀
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Find out how I coped in my book “Pink Slippers”⠀
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#Dementia #Alzheimers #parkinsons #memoryloss #book #PinkSlippers  #carer
  • People with dementia may often experience problems with going to the toilet. Both urinary incontinence and bowel incontinence can be difficult to deal with. It can also be very upsetting for the person you care for and for you.⠀

    Sometimes the person with dementia may simply forget they need the toilet or where the toilet is. Although it may be hard, it's important to be understanding about toilet problems. Try to retain a sense of humour, if appropriate, and remember it's not the person's fault.⠀

    You may also want to put a sign on the toilet door – pictures and words work well. Keep the toilet door open and keep a light on at night, or consider sensor lights. Look for signs that the person may need the toilet, such as fidgeting or standing up or down. Try to keep the person active – a daily walk helps with regular bowel movements, also try to make going to the toilet part of a regular daily routine⠀

    Find out how I coped in my book “Pink Slippers”⠀

    #Dementia #Alzheimers #parkinsons #memoryloss #book #PinkSlippers #carer
  •  4  1  13 hours ago
  • Another medical procedure lined up for Harrison. I can’t believe the timing is so soon after hip surgery. His bone infusion regime starts next month and then occurs every six months. 
Give the poor kid a break! 😩
  • Another medical procedure lined up for Harrison. I can’t believe the timing is so soon after hip surgery. His bone infusion regime starts next month and then occurs every six months.
    Give the poor kid a break! 😩
  •  43  3  14 hours ago

Top #carer Posts

  • *SWIPE TO SEE THIS BABE AFTER HE WAS BORN*
Poss poss came to us malnourished, after surviving without his mum for a few days, as she was found poisoned. Last weekend, we said goodbye to our fluffy friend, as he has been moved to a larger enclosure where he will be prepared for release. 
Volunteer work is hard, time consuming and sad as it’s impossible not to become attached but I HIGHLY recommend anyone reading this to help the wildlife if the have the time/money as it’s one of the most rewarding experiences I have ever done in my life :) I will post baby Lucifer soon as well!
  • *SWIPE TO SEE THIS BABE AFTER HE WAS BORN*
    Poss poss came to us malnourished, after surviving without his mum for a few days, as she was found poisoned. Last weekend, we said goodbye to our fluffy friend, as he has been moved to a larger enclosure where he will be prepared for release.
    Volunteer work is hard, time consuming and sad as it’s impossible not to become attached but I HIGHLY recommend anyone reading this to help the wildlife if the have the time/money as it’s one of the most rewarding experiences I have ever done in my life :) I will post baby Lucifer soon as well!
  •  1,330  47  13 May, 2019
  • Happy 62nd birthday to my mum. You made it! Five years ago my mother acquired meningitis and was in a coma for eight months. When she awoke she couldn't walk, talk or remember anything. It's a slow road towards functioning, but today she can walk and talk. Her memories are vanished and she needs 24hr care. It's a challenge to keep up the grace as a carer, hats off to all carers! This photo was just after she had wandered off from my house and was brought back in a police car, she was quite traumatised. Found her a relaxing job and put on music.. Always looking for ways to alleviate her anxiety. She knows things aren't right and I wouldn't say she is happy, but she really, really tries. #whenmemoriesarenteverything #braininjury #nihilist #existentialcrisis #carer #whenonlythepresentmatters #onedayatatime #eternalpresent #timeiscircular
  • Happy 62nd birthday to my mum. You made it! Five years ago my mother acquired meningitis and was in a coma for eight months. When she awoke she couldn't walk, talk or remember anything. It's a slow road towards functioning, but today she can walk and talk. Her memories are vanished and she needs 24hr care. It's a challenge to keep up the grace as a carer, hats off to all carers! This photo was just after she had wandered off from my house and was brought back in a police car, she was quite traumatised. Found her a relaxing job and put on music.. Always looking for ways to alleviate her anxiety. She knows things aren't right and I wouldn't say she is happy, but she really, really tries. #whenmemoriesarenteverything #braininjury #nihilist #existentialcrisis #carer #whenonlythepresentmatters #onedayatatime #eternalpresent #timeiscircular
  •  151  32  23 May, 2019
  • Der Pflegenotstand ist mittlerweile so groß, dass ganze Altenheime schließen müssen – weil sie kein Personal bekommen. Die 92-jährige Magda verliert dadurch ihr Zuhause. In der Altenpflege waren 2018 gut 21.000 Menschen mehr beschäftigt als im Vorjahr. Zusätzlich werden neue Stellen geschaffen, weil es immer mehr Pflegebedürftige gibt. Und trotzdem blieben laut Bundesagentur für Arbeit 2018 bundesweit knapp 40.000 Pflegestellen unbesetzt. ‍⚕️‍⚕️ #pflege #pflegenotstand #caregivers #altenpflegerin #altenpfleger #carer #care #home #heimat
  • Der Pflegenotstand ist mittlerweile so groß, dass ganze Altenheime schließen müssen – weil sie kein Personal bekommen. Die 92-jährige Magda verliert dadurch ihr Zuhause. In der Altenpflege waren 2018 gut 21.000 Menschen mehr beschäftigt als im Vorjahr. Zusätzlich werden neue Stellen geschaffen, weil es immer mehr Pflegebedürftige gibt. Und trotzdem blieben laut Bundesagentur für Arbeit 2018 bundesweit knapp 40.000 Pflegestellen unbesetzt. ‍⚕️‍⚕️ #pflege #pflegenotstand #caregivers #altenpflegerin #altenpfleger #carer #care #home #heimat
  •  483  30  4 June, 2019
  • The job I never wanted to apply for. Yet it was thrust upon me. The job that required no job interview. No checks to see if you were qualified. My CV unable to provide the qualifications and expertise for the job role.

Yet here I am. My old job a distant memory to the life I had back then. The person I use to be. As with everything I've had to adapt. Had to accept. Had to thrive. Thrive I have.

You see this job comes without holiday leave. I cannot ring in sick. Breaks are extinct in this line of work. This job has had no health and safety tested. Manual handling is required to inevitably break your back. Lunch is a microwave meal at the end of the day. Alone at night.

The minimum wage in the UK is £8.21 an hour. For a typical 9-5 job that's £65 a day. My wage I hear you ask? £66.15 a WEEK. For 24/7 care. 7 days a week. Thankfully money isn't my reward. You Littlefoot are.

The suffocating loneliness consumes me. On the bad days I wish I could pick up my coat and clock off my shift. Walk away to spend an evening in another life. Yet even with the bad days. My health deteriorating. The guilt that clutches at my heart. The grief that engulfs me. The exhaustion.... I get up everyday to do a job I never wanted yet now its here I couldn't imagine my life without it. Without you.

I dress you. I change your nappies. I bathe and do your cares. I lift you out of bed. I am a nurse. A therapist in specialist areas. A receptionist. The advocate.... A mum.

It's the worse job in the world. Yet its the best. When people ask what I do for a living. I no longer squirm at the question. I Proudly boast I look after my severely disabled daughter.

I help her live.
I help her grow.

Happy Carers week to every single parent in my line of 'work'. This week isn't about our children. It's about us. The unsung heroes. I see you. I am honoured to know such amazing people.
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#quadriplegic #cerebralpalsy #carersweek #carer #love #disabled #disability #wheelchairlife #motherhood #job #advocate #awareness
  • The job I never wanted to apply for. Yet it was thrust upon me. The job that required no job interview. No checks to see if you were qualified. My CV unable to provide the qualifications and expertise for the job role.

    Yet here I am. My old job a distant memory to the life I had back then. The person I use to be. As with everything I've had to adapt. Had to accept. Had to thrive. Thrive I have.

    You see this job comes without holiday leave. I cannot ring in sick. Breaks are extinct in this line of work. This job has had no health and safety tested. Manual handling is required to inevitably break your back. Lunch is a microwave meal at the end of the day. Alone at night.

    The minimum wage in the UK is £8.21 an hour. For a typical 9-5 job that's £65 a day. My wage I hear you ask? £66.15 a WEEK. For 24/7 care. 7 days a week. Thankfully money isn't my reward. You Littlefoot are.

    The suffocating loneliness consumes me. On the bad days I wish I could pick up my coat and clock off my shift. Walk away to spend an evening in another life. Yet even with the bad days. My health deteriorating. The guilt that clutches at my heart. The grief that engulfs me. The exhaustion.... I get up everyday to do a job I never wanted yet now its here I couldn't imagine my life without it. Without you.

    I dress you. I change your nappies. I bathe and do your cares. I lift you out of bed. I am a nurse. A therapist in specialist areas. A receptionist. The advocate.... A mum.

    It's the worse job in the world. Yet its the best. When people ask what I do for a living. I no longer squirm at the question. I Proudly boast I look after my severely disabled daughter.

    I help her live.
    I help her grow.

    Happy Carers week to every single parent in my line of 'work'. This week isn't about our children. It's about us. The unsung heroes. I see you. I am honoured to know such amazing people.
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    #quadriplegic #cerebralpalsy #carersweek #carer #love #disabled #disability #wheelchairlife #motherhood #job #advocate #awareness
  •  516  49  14 June, 2019
  • Life as a parent can be tough, challenging, exhausting, juggling everything life throws at you.

Life as a parent or carer to children with special needs can also be even more tiring. 
The emotional rollercoaster, the constant battle for support and getting your kids what they deserve and need. The endless paperwork, meetings with professionals. The sleepless nights, and having to provide round the clock care. If you add challenging behaviours to the mix, it all takes its toll physically and mentally. 
Which is why it’s so important to talk about and think about self-care. 
How are you going to cope with the lack of sleep, the constant attention and care needed, if you don’t take time for yourself?

We discussed this today on a course I’m attending in relation to Tommy and his challenging behaviours, which just confirmed what I already knew.

Our children will always be our number one priority in life, but we also need to find a way to look after ourselves. To make sure we are in the best possible physical, mental, and emotional state to be the parent or carer our kids need. 
Of course, finding the time can be difficult. We all have responsibilities on top of meeting our children’s needs, and some of us may have little or no support.

When we do get a quiet or free moment, often our guilt can kick in and it stops us doing what we need to look after ourselves.

But we need to find a way to make it happen. To ignore that guilty feeling, to make 10, 20, 30 minutes in a day just for us. To get a night out every now and again, to go have a massage, go shopping, go to the gym, whatever it is that’s going to put a smile on our faces.

For me, exercise really helps. When I manage to get in a routine of doing so I feel like I have more energy, more patience, I can be a better dad. 
Plus I have this blog. Writing is cathartic for me, getting my thoughts out of my head, interacting with you all, always helps my state of mind. 
What I need to do is to find a way to be more social. To spend time with friends and family more often, that’s what I need to work on.

So tell me, what works for you? How do you look after yourself? What would you do if you had the chance? ❤️
  • Life as a parent can be tough, challenging, exhausting, juggling everything life throws at you.

    Life as a parent or carer to children with special needs can also be even more tiring.
    The emotional rollercoaster, the constant battle for support and getting your kids what they deserve and need. The endless paperwork, meetings with professionals. The sleepless nights, and having to provide round the clock care. If you add challenging behaviours to the mix, it all takes its toll physically and mentally.
    Which is why it’s so important to talk about and think about self-care.
    How are you going to cope with the lack of sleep, the constant attention and care needed, if you don’t take time for yourself?

    We discussed this today on a course I’m attending in relation to Tommy and his challenging behaviours, which just confirmed what I already knew.

    Our children will always be our number one priority in life, but we also need to find a way to look after ourselves. To make sure we are in the best possible physical, mental, and emotional state to be the parent or carer our kids need.
    Of course, finding the time can be difficult. We all have responsibilities on top of meeting our children’s needs, and some of us may have little or no support.

    When we do get a quiet or free moment, often our guilt can kick in and it stops us doing what we need to look after ourselves.

    But we need to find a way to make it happen. To ignore that guilty feeling, to make 10, 20, 30 minutes in a day just for us. To get a night out every now and again, to go have a massage, go shopping, go to the gym, whatever it is that’s going to put a smile on our faces.

    For me, exercise really helps. When I manage to get in a routine of doing so I feel like I have more energy, more patience, I can be a better dad.
    Plus I have this blog. Writing is cathartic for me, getting my thoughts out of my head, interacting with you all, always helps my state of mind.
    What I need to do is to find a way to be more social. To spend time with friends and family more often, that’s what I need to work on.

    So tell me, what works for you? How do you look after yourself? What would you do if you had the chance? ❤️
  •  820  56  3 April, 2019
  • This chair lifts up fallen people in a safe and dignified way.

Follow @techthatmatters to keep up to date with videos of technology being used for the greater good.
  • This chair lifts up fallen people in a safe and dignified way.

    Follow @techthatmatters to keep up to date with videos of technology being used for the greater good.
  •  1,637  13  13 hours ago