#NotEveryDisabilityIsVisible Instagram Photos & Videos

NotEveryDisabilityIsVisible - 1.9k posts

Latest #NotEveryDisabilityIsVisible Posts

  • 🤞🏽3 weeks today I will be having my “barbie butt”. Since my subtotal colectomy and formation of my stoma my life has improved drastically. 
However- I am having increasingly more and more problems with what they call my “rectal stump”. This is the last 10cm of my bowel they left in case I wanted to try a “j-pouch” and try to have my stoma reversed. 
I have considered this ever since my operation and because one of the main issues I had with my UC prior to my original operation was proctitis and a lot of issues from my rectum, I’ve decided this is the only way for me and the only way I will really get better. 
I have thought this over and over, but I just can’t see how having a j- pouch would be suitable for me. I absolutely love my stoma, I realise I am very lucky with how I have adapted to him, some people don’t as well as I have. I have decided I will keep Stan forever, and that a full removal of the rectum and the area around there, including my bum (they will close my bum forever) is the right thing for me to do. 
Even today, I have passed more and more blood from the area and it’s just so uncomfortable and painful. My operation should have been today, however it had to be rescheduled unfortunately. So fingers crossed, this time in 2 weeks I will be out of recovery and on the road to a healthier, better life and one which I can move forward with- and get rid of my UC completely. 
Don’t get me wrong, I’m rather nervous about it, but I can’t wait to get it done. #endstomastigma #lifetakesguts #noteverydisabilityisvisible #barbiebutt @crohnsandcolitisuk #permanentstoma
  • 🤞🏽3 weeks today I will be having my “barbie butt”. Since my subtotal colectomy and formation of my stoma my life has improved drastically.
    However- I am having increasingly more and more problems with what they call my “rectal stump”. This is the last 10cm of my bowel they left in case I wanted to try a “j-pouch” and try to have my stoma reversed.
    I have considered this ever since my operation and because one of the main issues I had with my UC prior to my original operation was proctitis and a lot of issues from my rectum, I’ve decided this is the only way for me and the only way I will really get better.
    I have thought this over and over, but I just can’t see how having a j- pouch would be suitable for me. I absolutely love my stoma, I realise I am very lucky with how I have adapted to him, some people don’t as well as I have. I have decided I will keep Stan forever, and that a full removal of the rectum and the area around there, including my bum (they will close my bum forever) is the right thing for me to do.
    Even today, I have passed more and more blood from the area and it’s just so uncomfortable and painful. My operation should have been today, however it had to be rescheduled unfortunately. So fingers crossed, this time in 2 weeks I will be out of recovery and on the road to a healthier, better life and one which I can move forward with- and get rid of my UC completely.
    Don’t get me wrong, I’m rather nervous about it, but I can’t wait to get it done. #endstomastigma #lifetakesguts #noteverydisabilityisvisible #barbiebutt @crohnsandcolitisuk #permanentstoma
  •  17  0  7 hours ago
  • 🤞🏽3 weeks today I will be having my “barbie butt”. Since my subtotal colectomy and formation of my stoma my life has improved drastically. 
However- I am having increasingly more and more problems with what they call my “rectal stump”. This is the last 10cm of my bowel they left in case I wanted to try a “j-pouch” and try to have my stoma reversed. 
I have considered this ever since my operation and because one of the main issues I had with my UC prior to my original operation was proctitis and a lot of issues from my rectum, I’ve decided this is the best way forward for me, and the only way really to get better. 
I have thought this over and over, but I just can’t see how having a j- pouch would be suitable for me. I absolutely love my stoma, I realise I am very lucky with how I have adapted to him, some people don’t as well as I have. I have decided I will keep Stan forever, and that a full removal of the rectum and the area around there, including my bum (they will close my bum forever) is the right thing for me to do. 
Even today, I have passed more and more blood from the area and it’s just so uncomfortable and painful. My operation should have been today, however it had to be rescheduled unfortunately. So fingers crossed, this time in 2 weeks I will be out of recovery and on the road to a healthier, better life and one which I can move forward with- and get rid of my UC completely. 
Don’t get me wrong, I’m rather nervous about it, but I can’t wait to get it done. #endstomastigma #lifetakesguts #noteverydisabilityisvisible #barbiebutt @crohnsandcolitisuk #permanentstoma
  • 🤞🏽3 weeks today I will be having my “barbie butt”. Since my subtotal colectomy and formation of my stoma my life has improved drastically.
    However- I am having increasingly more and more problems with what they call my “rectal stump”. This is the last 10cm of my bowel they left in case I wanted to try a “j-pouch” and try to have my stoma reversed.
    I have considered this ever since my operation and because one of the main issues I had with my UC prior to my original operation was proctitis and a lot of issues from my rectum, I’ve decided this is the best way forward for me, and the only way really to get better.
    I have thought this over and over, but I just can’t see how having a j- pouch would be suitable for me. I absolutely love my stoma, I realise I am very lucky with how I have adapted to him, some people don’t as well as I have. I have decided I will keep Stan forever, and that a full removal of the rectum and the area around there, including my bum (they will close my bum forever) is the right thing for me to do.
    Even today, I have passed more and more blood from the area and it’s just so uncomfortable and painful. My operation should have been today, however it had to be rescheduled unfortunately. So fingers crossed, this time in 2 weeks I will be out of recovery and on the road to a healthier, better life and one which I can move forward with- and get rid of my UC completely.
    Don’t get me wrong, I’m rather nervous about it, but I can’t wait to get it done. #endstomastigma #lifetakesguts #noteverydisabilityisvisible #barbiebutt @crohnsandcolitisuk #permanentstoma
  •  37  29  7 hours ago
  • As IBD patients we all know this too well! Also we ask what our CRP is a lot, this counts the level of active inflammation in a persons body! A normal level is around 5 for a standard person, depending on who it is. IBD patients tend to have a slightly higher one. Not in all cases though, mine was 9 the last time it was checked, but has also been in the three hundreds! As IBD is a disease in our immune system and not in our digestive tract. We have to be treated with immuno suppressant drugs. Our body is attacking itself, as if it wants to reject the colon in UC and in Crohns the whole digestive system. We are suppressed the same way a person having a transplant would be. And many drugs used are used to treat some cancers. The drugs we have to take are serious and hardcore treatments. I just want to raise the seriousness of what we go through with this! 💜💪🏼 it isnt just a belly ache, or someone with toilet issues, its part of who we are. We didnt choose this life, or to have operations, to be scarred. More than anything to have our lives taken from us and our memories and dreams crushed with years of hospital appts. Our mental state damaged beyond belief. IBD patients are true warriors! •
•
#bodyconfience #immunosuppressed #noteverydisabilityisvisible #inflammatoryboweldisease #crohnsandcolitisuk #stelera #infliximab #humira #methotrexate #azathiaprine #teamibd #ibd #gastro #awareness #treatment #CCUK #antitnf #bloods #CRP #spoonie #crohnswarrior #colitis #uc #livinglife #warrior #positivevibes #drugs #boweldisease
  • As IBD patients we all know this too well! Also we ask what our CRP is a lot, this counts the level of active inflammation in a persons body! A normal level is around 5 for a standard person, depending on who it is. IBD patients tend to have a slightly higher one. Not in all cases though, mine was 9 the last time it was checked, but has also been in the three hundreds! As IBD is a disease in our immune system and not in our digestive tract. We have to be treated with immuno suppressant drugs. Our body is attacking itself, as if it wants to reject the colon in UC and in Crohns the whole digestive system. We are suppressed the same way a person having a transplant would be. And many drugs used are used to treat some cancers. The drugs we have to take are serious and hardcore treatments. I just want to raise the seriousness of what we go through with this! 💜💪🏼 it isnt just a belly ache, or someone with toilet issues, its part of who we are. We didnt choose this life, or to have operations, to be scarred. More than anything to have our lives taken from us and our memories and dreams crushed with years of hospital appts. Our mental state damaged beyond belief. IBD patients are true warriors! •

    #bodyconfience #immunosuppressed #noteverydisabilityisvisible #inflammatoryboweldisease #crohnsandcolitisuk #stelera #infliximab #humira #methotrexate #azathiaprine #teamibd #ibd #gastro #awareness #treatment #CCUK #antitnf #bloods #CRP #spoonie #crohnswarrior #colitis #uc #livinglife #warrior #positivevibes #drugs #boweldisease
  •  35  1  9 hours ago
  • First day back at work after six months off.... COMPLETED IT MATE! 
So you may or may not know but I’m a Nurse... not just any nurse but I specialise in surgery... so mainly bowels so I see a lot of patients who face new Stomas/ bowel problems every day. Iv been doing this job for just over 9 years now so you can safely say I love it! Nothing puts me off, I’m not squeamish in the slightest... I could say Iv seen it all but then something else would come along! So going back today after my operation, I was a little nervous but after an hour, tbh it felt like I’d never been away. I missed my job, I’m very much a routine girl and it’s a big part of my life! 
I had ileostomy/barbie butt on the ward I work on six months ago now, and when I was planning the op I was going to have it at another hospital but in the end I changed my mind, something clicked. Non of my colleagues knew about my previous ileostomy because well there wasn’t a reason to tell them, it doesn’t make me any less of a nurse but I thought why should I go get treated somewhere else with a bunch of strangers? I couldn’t care less that you know which hole I shit out of 😂. In all honesty what’s ‘normal’ because there isn’t anything normal about anyone, everyone’s different and that’s what makes us all individual and unique.. there the only things that make us different 💜 that’s what makes you special.. there’s no one in the world quite like you 💜
These pictures are from just before the start of my shift on Xmas day... many years ago 🙈.
.
#crohnsdisease #ulcerativecolitis #teamibd #inflamatoryboweldisease #lifewithibd #invisibleillness #noteverydisabilityisvisible #crohnsandcolitisuk #ileostomy #ileostomylife #stoma #ostomate #bagwhatbag #breakthestigma #nocolonstillrollin #nurse #nurselife #nhs #lovemyjob #colorectalsurgery #blessed #raisingawareness #lifetakesguts
  • First day back at work after six months off.... COMPLETED IT MATE!
    So you may or may not know but I’m a Nurse... not just any nurse but I specialise in surgery... so mainly bowels so I see a lot of patients who face new Stomas/ bowel problems every day. Iv been doing this job for just over 9 years now so you can safely say I love it! Nothing puts me off, I’m not squeamish in the slightest... I could say Iv seen it all but then something else would come along! So going back today after my operation, I was a little nervous but after an hour, tbh it felt like I’d never been away. I missed my job, I’m very much a routine girl and it’s a big part of my life!
    I had ileostomy/barbie butt on the ward I work on six months ago now, and when I was planning the op I was going to have it at another hospital but in the end I changed my mind, something clicked. Non of my colleagues knew about my previous ileostomy because well there wasn’t a reason to tell them, it doesn’t make me any less of a nurse but I thought why should I go get treated somewhere else with a bunch of strangers? I couldn’t care less that you know which hole I shit out of 😂. In all honesty what’s ‘normal’ because there isn’t anything normal about anyone, everyone’s different and that’s what makes us all individual and unique.. there the only things that make us different 💜 that’s what makes you special.. there’s no one in the world quite like you 💜
    These pictures are from just before the start of my shift on Xmas day... many years ago 🙈.
    .
    #crohnsdisease #ulcerativecolitis #teamibd #inflamatoryboweldisease #lifewithibd #invisibleillness #noteverydisabilityisvisible #crohnsandcolitisuk #ileostomy #ileostomylife #stoma #ostomate #bagwhatbag #breakthestigma #nocolonstillrollin #nurse #nurselife #nhs #lovemyjob #colorectalsurgery #blessed #raisingawareness #lifetakesguts
  •  77  7  9 hours ago
  • Anyone else agree?
  • Anyone else agree?
  •  965  66  11 hours ago
  • An Easter of two halves...
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I've never really identified as 'disabled'. That certainly doesn't mean I think people with Crohn's, Colitis and other hidden conditions or chronic illnesses shouldn't. It's personal. I wholeheartedly back the current @crohnsandcolitisuk #noteverydisabilityisvisible campaign. The imagery they are using to convey their message is so powerful.
.
Afterall you never really know what someone is going through. Be that illness, heartbreak or mental health problems. Like the quote that I often see refashioned and reshared "Be kind, for everyone you meet is fighting a hard battle"
.
We all know social media never really shows reality. What do you see in this photo? A carefree and happy life? A mother having a wonderful time with her daughter?
I was.
.
But what it doesn't show is that the night before I spend 5 hours writhing in pain from a blockage, throwing up and begging my husband to make the pain go away. I am giggling at the fairground with my daughter. But I also hadn't eaten for nearly 24hours beforehand. I was exhausted, weak, uncomfortable and I promptly fell asleep on the sofa when I got home.
.
Ask me if I had a nice Easter and I will say, "Yes, it was lovely."
.
It was. The sun shone, I spent time with family and friends. I baked. I ran. It really was lovely. I say this because it's true. I also say it because my default nature will always be set to positive. That does not make it easy to keep positive. But I will always strive to focus on what's good. I can no longer tolerate negativity. My positivity is my strength. When I feel that slipping away is when I most feel like I am loosing myself.
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So yes, I had a lovely Easter. That's not a lie. But just like a single photo shared online or a glance at someone you see walking down the street it doesn't necessarily paint the whole picture.
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So... Be Kind. Always. 
Happy Easter 🐣
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.
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#hiddendisability #hiddendisabilities #hiddenillness #chronicillness #chronicallyillmum#sickmum #crohnsdisease #colitis #crohnsandcolitis #jpouch #jpouchlife #internalpouch #adhesions #bekind #nocolonstillrollin #youdontlooksick #ittakesguts
  • An Easter of two halves...
    .
    I've never really identified as 'disabled'. That certainly doesn't mean I think people with Crohn's, Colitis and other hidden conditions or chronic illnesses shouldn't. It's personal. I wholeheartedly back the current @crohnsandcolitisuk #noteverydisabilityisvisible campaign. The imagery they are using to convey their message is so powerful.
    .
    Afterall you never really know what someone is going through. Be that illness, heartbreak or mental health problems. Like the quote that I often see refashioned and reshared "Be kind, for everyone you meet is fighting a hard battle"
    .
    We all know social media never really shows reality. What do you see in this photo? A carefree and happy life? A mother having a wonderful time with her daughter?
    I was.
    .
    But what it doesn't show is that the night before I spend 5 hours writhing in pain from a blockage, throwing up and begging my husband to make the pain go away. I am giggling at the fairground with my daughter. But I also hadn't eaten for nearly 24hours beforehand. I was exhausted, weak, uncomfortable and I promptly fell asleep on the sofa when I got home.
    .
    Ask me if I had a nice Easter and I will say, "Yes, it was lovely."
    .
    It was. The sun shone, I spent time with family and friends. I baked. I ran. It really was lovely. I say this because it's true. I also say it because my default nature will always be set to positive. That does not make it easy to keep positive. But I will always strive to focus on what's good. I can no longer tolerate negativity. My positivity is my strength. When I feel that slipping away is when I most feel like I am loosing myself.
    .
    So yes, I had a lovely Easter. That's not a lie. But just like a single photo shared online or a glance at someone you see walking down the street it doesn't necessarily paint the whole picture.
    .
    So... Be Kind. Always.
    Happy Easter 🐣
    . .
    .
    .
    .
    .
    #hiddendisability #hiddendisabilities #hiddenillness #chronicillness #chronicallyillmum #sickmum #crohnsdisease #colitis #crohnsandcolitis #jpouch #jpouchlife #internalpouch #adhesions #bekind #nocolonstillrollin #youdontlooksick #ittakesguts
  •  36  4  11 hours ago
  • Hi, my name is Mickey I am 25 years old and I was diagnosed with Crohn’s Disease in 2017. 🔸
For as a long as I can remember, symptoms of diarrhea, hair loss, joint pain and intense stomach pain dominated large portions of my life. The uncertainty of wondering what’s happening to me and switching from doctor to doctor went on for about 7 years pre-diagnosis. 🔸
It wasn’t until I developed a large amount of blood in my stool and dropped 30 pounds that my first colonoscopy was performed. Once they decided that Crohn’s was the cause of my problems, they began trying me on medications such as pentasa, budesodine, lialda, mesalamine and humira. Humira failed me and landed me in the hospital every month. 🔸
My body developed antibodies to this medication. A stool sample showed I developed C-diff infection. In 2018, I switched to Remicade infusions. The change was definitely for the better. No more blood in my stool. 🔸
I am still very weak, tired most days, have loss of appetite and have to rush towards the nearest bathroom which is a standard with Crohn’s. I do frequently have times where I am not at my best and it is difficult to stay positive. 🔸
Despite this, being diagnosed has made me not take health for granted and make the most out of everyday, so you do feel good. I know that the journey isn’t over but I am thankful for the support of a great doctor and family by my side. 🔸
#ItTakesGuts to talk about Crohn’s and Colitis... this is Mickey’s story.
@itchyeyephotos
  • Hi, my name is Mickey I am 25 years old and I was diagnosed with Crohn’s Disease in 2017. 🔸
    For as a long as I can remember, symptoms of diarrhea, hair loss, joint pain and intense stomach pain dominated large portions of my life. The uncertainty of wondering what’s happening to me and switching from doctor to doctor went on for about 7 years pre-diagnosis. 🔸
    It wasn’t until I developed a large amount of blood in my stool and dropped 30 pounds that my first colonoscopy was performed. Once they decided that Crohn’s was the cause of my problems, they began trying me on medications such as pentasa, budesodine, lialda, mesalamine and humira. Humira failed me and landed me in the hospital every month. 🔸
    My body developed antibodies to this medication. A stool sample showed I developed C-diff infection. In 2018, I switched to Remicade infusions. The change was definitely for the better. No more blood in my stool. 🔸
    I am still very weak, tired most days, have loss of appetite and have to rush towards the nearest bathroom which is a standard with Crohn’s. I do frequently have times where I am not at my best and it is difficult to stay positive. 🔸
    Despite this, being diagnosed has made me not take health for granted and make the most out of everyday, so you do feel good. I know that the journey isn’t over but I am thankful for the support of a great doctor and family by my side. 🔸
    #ItTakesGuts to talk about Crohn’s and Colitis... this is Mickey’s story.
    @itchyeyephotos
  •  384  14  18 hours ago
  • 3 years ago! Ahhh my red hair! 😭 I miss you!
I obviously felt I looked good enough to take a mirror selfie in this picture, but I remember I was horrendously ill, I’d been to a wedding in London and had to go to bed after the ceremony as I felt so bad, then dragged myself out to get ready for the reception throwing up a few times whilst I got dressed. Made it down to the reception for a couple of hours before I had to go back to my room. Proof that you can’t always tell how someone feels from how they look... I was diagnosed with Crohn’s Disease very soon after. 
#crohns #crohnsdisease #crohnsandcolitis #ibd #inflammatoryboweldisease #noteverydisabilityisvisible #ibdawareness
  • 3 years ago! Ahhh my red hair! 😭 I miss you!
    I obviously felt I looked good enough to take a mirror selfie in this picture, but I remember I was horrendously ill, I’d been to a wedding in London and had to go to bed after the ceremony as I felt so bad, then dragged myself out to get ready for the reception throwing up a few times whilst I got dressed. Made it down to the reception for a couple of hours before I had to go back to my room. Proof that you can’t always tell how someone feels from how they look... I was diagnosed with Crohn’s Disease very soon after.
    #crohns #crohnsdisease #crohnsandcolitis #ibd #inflammatoryboweldisease #noteverydisabilityisvisible #ibdawareness
  •  23  1  20 hours ago
  • Easter Monday took us away to the mountains in the beautiful County Fermanagh ☀️ 🏞️ the views (and more likely all those bloody steps!) completely took my breath away 😍 These photos don't do it any justice, I'd recommend anyone to go check it out for themselves 📸  We really are blessed with such a beautiful country! ☘️ It was tough going in parts (I'm not gonna lie and pretend it was a total breeze climbing up there!) but, when we reached the top I felt such a sense of accomplishment 💪 👏
To most people, it's just a mountain walk, but six months ago I wouldn't have been able to do this walk; physically I was nowhere near well enough to be away from a toilet for more than 10 minutes, mentally I was crippled with anxiety as a result of my colitis and didn't leave the house unless I was going to work.
 So thanks to Bubbles my trusty wee bag I was able to dander along and appreciate the surroundings rather than worry 💭 this was more than just a walk for me, this was total realisation that I have my life back and complete gratitude for the freedom my bag has brought back to me✨💜
  • Easter Monday took us away to the mountains in the beautiful County Fermanagh ☀️ 🏞️ the views (and more likely all those bloody steps!) completely took my breath away 😍 These photos don't do it any justice, I'd recommend anyone to go check it out for themselves 📸 We really are blessed with such a beautiful country! ☘️ It was tough going in parts (I'm not gonna lie and pretend it was a total breeze climbing up there!) but, when we reached the top I felt such a sense of accomplishment 💪 👏
    To most people, it's just a mountain walk, but six months ago I wouldn't have been able to do this walk; physically I was nowhere near well enough to be away from a toilet for more than 10 minutes, mentally I was crippled with anxiety as a result of my colitis and didn't leave the house unless I was going to work.
    So thanks to Bubbles my trusty wee bag I was able to dander along and appreciate the surroundings rather than worry 💭 this was more than just a walk for me, this was total realisation that I have my life back and complete gratitude for the freedom my bag has brought back to me✨💜
  •  44  21  20 hours ago
  • 💋
  • 💋
  •  58  4  23 April, 2019
  • BIOPSY RESULTS
•
i’ve been processing these results for quite some time because they were definitely not the answers i’ve expected. i will be having surgery this summer to remove the mass in my thyroid. the biopsy found a combination of cancerous and precancerous cells, as well as something called a follicular neoplasm which makes it difficult for the dr to tell whether my mass is 100% cancer or if it’s something else (however he’s sure it’s not benign) it’s a level 4 biopsy result which means it’s a high risk of cancer, so the protocol is to remove the mass, test it, and then find out what kind of treatment or surgery is required. so def not what i wanted to hear and i’m not looking forward to another surgery, but i’m lucky that this is treatable and that i caught it before things progressed. sometimes it feels like it’s one thing after another, and i can’t even catch up. sometimes it feels like my body is really just trying to kill me and i have to fight everyday to survive. but i’m tough and i’ve made it through some shit that 3 years ago i couldn’t even imagine facing, so im gonna keep on fighting. •
thank you to everyone who messaged me and supporting me. i’m so grateful for alllll you guys for making me smile when everything feels like it’s falling apart. love you all💜
  • BIOPSY RESULTS

    i’ve been processing these results for quite some time because they were definitely not the answers i’ve expected. i will be having surgery this summer to remove the mass in my thyroid. the biopsy found a combination of cancerous and precancerous cells, as well as something called a follicular neoplasm which makes it difficult for the dr to tell whether my mass is 100% cancer or if it’s something else (however he’s sure it’s not benign) it’s a level 4 biopsy result which means it’s a high risk of cancer, so the protocol is to remove the mass, test it, and then find out what kind of treatment or surgery is required. so def not what i wanted to hear and i’m not looking forward to another surgery, but i’m lucky that this is treatable and that i caught it before things progressed. sometimes it feels like it’s one thing after another, and i can’t even catch up. sometimes it feels like my body is really just trying to kill me and i have to fight everyday to survive. but i’m tough and i’ve made it through some shit that 3 years ago i couldn’t even imagine facing, so im gonna keep on fighting. •
    thank you to everyone who messaged me and supporting me. i’m so grateful for alllll you guys for making me smile when everything feels like it’s falling apart. love you all💜
  •  226  51  22 April, 2019
  • |The happiest of birthdays|
•
Maya turned 6 on Saturday so yesterday we had an amazing birthday party/Easter day picnic with her best doggy friend, Yuki, and her humans whom we also happen to like very much!
It was such a good day, relaxing in the dappled light and shade under a big tree, enjoying the summer feels in April! (Although my POTS is most definitely *not* a fan of the sudden rise in temperature and I am a very lightheaded wobbly human!)
•
Our picnic was delightful; our cool boxes were filled with many treats and even some lemonade and baby bottles of lager to make some shandies! And Pip and Paul kindly treated us to mr whippies with sprinkles on from the ice cream van there. He makes the best mr whippies in Bristol (Pip and I obsess over them!) so if you live nearby, be sure to give him a visit - he arrives around 11am!
•
The doggies would take a wee notion and do zoomies chasing each other around before coming back and plopping down on the cool shaded grass. We had lots of chilled water for them in our cool boxes and cooling blankets too, don’t worry, they were good!
•
All in all it was an absolutely fantastic day and I could not have asked for a better Easter, nor could Maya a better birthday! We are very lucky to have such good friends nearby to spend quality time with 😊
•
The only reason I’m bringing this next bit up is to use it as an opportunity to educate a little - there was one slightly bad thing about yday, when some people playing frisbee nearby got a bit too enthusiastic and sent it flying our way and it boinked right off of my left shoulder.
It wasn’t a kiddy frisbee either, it was one of those sporty ring ones with the hard rubber edging. Thankfully it didn’t hit an inch to the left or else it would have probably subluxated my shoulder a bit! Instead I’ve just got a sore shoulder with a welt and some bruising, which I can live with!
The thing that sucked was that the family were kind of blasé about it and just shouted a loose apology. But then they did move away so that was good.
{Cont}
  • |The happiest of birthdays|

    Maya turned 6 on Saturday so yesterday we had an amazing birthday party/Easter day picnic with her best doggy friend, Yuki, and her humans whom we also happen to like very much!
    It was such a good day, relaxing in the dappled light and shade under a big tree, enjoying the summer feels in April! (Although my POTS is most definitely *not* a fan of the sudden rise in temperature and I am a very lightheaded wobbly human!)

    Our picnic was delightful; our cool boxes were filled with many treats and even some lemonade and baby bottles of lager to make some shandies! And Pip and Paul kindly treated us to mr whippies with sprinkles on from the ice cream van there. He makes the best mr whippies in Bristol (Pip and I obsess over them!) so if you live nearby, be sure to give him a visit - he arrives around 11am!

    The doggies would take a wee notion and do zoomies chasing each other around before coming back and plopping down on the cool shaded grass. We had lots of chilled water for them in our cool boxes and cooling blankets too, don’t worry, they were good!

    All in all it was an absolutely fantastic day and I could not have asked for a better Easter, nor could Maya a better birthday! We are very lucky to have such good friends nearby to spend quality time with 😊

    The only reason I’m bringing this next bit up is to use it as an opportunity to educate a little - there was one slightly bad thing about yday, when some people playing frisbee nearby got a bit too enthusiastic and sent it flying our way and it boinked right off of my left shoulder.
    It wasn’t a kiddy frisbee either, it was one of those sporty ring ones with the hard rubber edging. Thankfully it didn’t hit an inch to the left or else it would have probably subluxated my shoulder a bit! Instead I’ve just got a sore shoulder with a welt and some bruising, which I can live with!
    The thing that sucked was that the family were kind of blasé about it and just shouted a loose apology. But then they did move away so that was good.
    {Cont}
  •  249  14  22 April, 2019
  • DIET & ULCERATIVE COLITIS:
-
Generally, the most important thing is to eat a nutritious and balanced diet to maintain your weight and strength, and to drink enough fluids to prevent you from becoming dehydrated. Even so, you may find that certain foods affect your symptoms.
-
For example, when you have a flare-up, bland, soft foods may cause less discomfort than raw vegetables or spicy foods. You may also find that eating too much fibre can increase the urge to go to the toilet.
-
The urge to open the bowels is usually caused by inflammation in the lower colon, but, as fibre adds bulk to faeces, it can act as a trigger and make the urgency worse. So, it may be helpful during flare-ups to reduce the amount of fibre you eat and perhaps go on a low-fibre diet.
-
In order to make sure your diet remains healthy and well balanced, it is important to get advice from your doctor or dietitian before you make any major changes.
-
Once the flare-up is over, you should try to increase your intake of fibre again. Fibre is useful because it keeps the colon healthier as well as providing fuel for beneficial bacteria.
-
Some people with UC have noticed that dairy products trigger their symptoms – although research suggests that, in general, people with UC are no more likely to be lactose intolerant than the general population.
-
You may sometimes need nutritional supplements to replace low levels of vitamins and minerals. This can happen when you have a poor appetite, do not eat enough, or when you have ongoing diarrhoea.
-
Many people with IBD are also deficient in vitamin D. Vitamin D is formed by the action of sunlight on the skin and is also found in foods such as eggs and oily fish. It is important for the immune system and is also needed for healthy bones.
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For more information visit: https://www.crohnsandcolitis.org.uk/about-inflammatory-bowel-disease/publications/ulcerative-colitis
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#thegrumblinggut #beatthestigma #crohnsdisease #ulcerativecolitis #ItTakesGuts #noteverydisabilityisvisible 
#realfood #multivitamins #dietlife #dietwhatdiet #bvitamins #wholefood #healthyfood #nutrients #weightlossfood #colitis #colitisfighter #dieting #diettips
  • DIET & ULCERATIVE COLITIS:
    -
    Generally, the most important thing is to eat a nutritious and balanced diet to maintain your weight and strength, and to drink enough fluids to prevent you from becoming dehydrated. Even so, you may find that certain foods affect your symptoms.
    -
    For example, when you have a flare-up, bland, soft foods may cause less discomfort than raw vegetables or spicy foods. You may also find that eating too much fibre can increase the urge to go to the toilet.
    -
    The urge to open the bowels is usually caused by inflammation in the lower colon, but, as fibre adds bulk to faeces, it can act as a trigger and make the urgency worse. So, it may be helpful during flare-ups to reduce the amount of fibre you eat and perhaps go on a low-fibre diet.
    -
    In order to make sure your diet remains healthy and well balanced, it is important to get advice from your doctor or dietitian before you make any major changes.
    -
    Once the flare-up is over, you should try to increase your intake of fibre again. Fibre is useful because it keeps the colon healthier as well as providing fuel for beneficial bacteria.
    -
    Some people with UC have noticed that dairy products trigger their symptoms – although research suggests that, in general, people with UC are no more likely to be lactose intolerant than the general population.
    -
    You may sometimes need nutritional supplements to replace low levels of vitamins and minerals. This can happen when you have a poor appetite, do not eat enough, or when you have ongoing diarrhoea.
    -
    Many people with IBD are also deficient in vitamin D. Vitamin D is formed by the action of sunlight on the skin and is also found in foods such as eggs and oily fish. It is important for the immune system and is also needed for healthy bones.
    -
    For more information visit: https://www.crohnsandcolitis.org.uk/about-inflammatory-bowel-disease/publications/ulcerative-colitis
    -
    -
    -
    -
    -
    #thegrumblinggut #beatthestigma #crohnsdisease #ulcerativecolitis #ItTakesGuts #noteverydisabilityisvisible
    #realfood #multivitamins #dietlife #dietwhatdiet #bvitamins #wholefood #healthyfood #nutrients #weightlossfood #colitis #colitisfighter #dieting #diettips
  •  150  12  22 April, 2019
  • Happy Easter and Bank Holiday weekend Everyone 🐣 •
It’s been such a sunny weekend and although I had work yesterday, we well and truly made up for it today at the beach! 🏖 I totally misjudged the weather yesterday and didn’t drink enough which meant I ended up with the worst headache pain in my head and down my face last night. Because I have no colon I don’t absorb fluids as well as I used too so not drinking enough with a stoma is bad. I decided this morning to try something new and throw a Dioralyte in my water. It’s blooming worked! I’ve spent a day at the beach with the fam and not felt dehydrated AT ALL and I’ve had one when I got home too just to keep on top of it. I used to use sports drinks but I recently learned they’re no good so I’m glad I’ve found something that helps and hopefully I won’t have that headache again, it’s the worst! •
I also tried out the ostomist samples this weekend that I received the other day from @respondltd ! What a GAME CHANGER! These pop in your bag and make the output in your bag not smell too strong when emptying. They definitely work, only used one sachet and I haven’t smell anything but mint and emptied about 3/4 times today! I will definitely been using these again! •
•
•
#stomasquad #ibdsuperheroes #IBD #ostomylife #ostomybag #ostomyproducts
#whatostomateswear #dioralyte #stoma #ittakesguts #invisibleillness #noteverydisabilityisvisible #bagwhatbag #nocolonstillrollin #ootd #crohns #ulcerativecolitis #ileostomy
  • Happy Easter and Bank Holiday weekend Everyone 🐣 •
    It’s been such a sunny weekend and although I had work yesterday, we well and truly made up for it today at the beach! 🏖 I totally misjudged the weather yesterday and didn’t drink enough which meant I ended up with the worst headache pain in my head and down my face last night. Because I have no colon I don’t absorb fluids as well as I used too so not drinking enough with a stoma is bad. I decided this morning to try something new and throw a Dioralyte in my water. It’s blooming worked! I’ve spent a day at the beach with the fam and not felt dehydrated AT ALL and I’ve had one when I got home too just to keep on top of it. I used to use sports drinks but I recently learned they’re no good so I’m glad I’ve found something that helps and hopefully I won’t have that headache again, it’s the worst! •
    I also tried out the ostomist samples this weekend that I received the other day from @respondltd ! What a GAME CHANGER! These pop in your bag and make the output in your bag not smell too strong when emptying. They definitely work, only used one sachet and I haven’t smell anything but mint and emptied about 3/4 times today! I will definitely been using these again! •


    #stomasquad #ibdsuperheroes #IBD #ostomylife #ostomybag #ostomyproducts
    #whatostomateswear #dioralyte #stoma #ittakesguts #invisibleillness #noteverydisabilityisvisible #bagwhatbag #nocolonstillrollin #ootd #crohns #ulcerativecolitis #ileostomy
  •  50  1  21 April, 2019
  • The colour of my skin is saying so where’s this sunshine your all on about? I haven’t seen it! This is also another face of #invisibleillness and #butyoudontlooksick. You wouldn’t know I’ve had three open surgeries just over a year, suffer chronic pain, degenerative disc disease, have an #ostomy #ileostomy have #nocolon, keep having funny turns and falling down, full body shakes, nausea, weakness, abdominal and back pain and the list could just go on. Same can be said for many many young people who are suffering yet people take one look at you and think ‘what really? Nahhhh surely not’ and your just like here we go again someone else who thinks we are over exaggerating. We do NOT enjoy living at the doctors surgery, the hospital, living on the phone to nurses, doctors.... we aren’t having fun or a holiday when we are signed off work! We wanna be capable like everyone else. So please stop judging us. 
#spoonie #chronicillness #discprolapse #fibromyalgia #mentalhealth #eupd #depression #anxiety #sticktogether #stopjudging #bekind #noteverydisabilityisvisible
  • The colour of my skin is saying so where’s this sunshine your all on about? I haven’t seen it! This is also another face of #invisibleillness and #butyoudontlooksick. You wouldn’t know I’ve had three open surgeries just over a year, suffer chronic pain, degenerative disc disease, have an #ostomy #ileostomy have #nocolon, keep having funny turns and falling down, full body shakes, nausea, weakness, abdominal and back pain and the list could just go on. Same can be said for many many young people who are suffering yet people take one look at you and think ‘what really? Nahhhh surely not’ and your just like here we go again someone else who thinks we are over exaggerating. We do NOT enjoy living at the doctors surgery, the hospital, living on the phone to nurses, doctors.... we aren’t having fun or a holiday when we are signed off work! We wanna be capable like everyone else. So please stop judging us.
    #spoonie #chronicillness #discprolapse #fibromyalgia #mentalhealth #eupd #depression #anxiety #sticktogether #stopjudging #bekind #noteverydisabilityisvisible
  •  41  1  21 April, 2019